Grants
newportbeachindy . com AUGUST 2 , 2024 11
CHARITY SPOTLIGHT
NHL All-Star Ryan Getzlaf Hosts 13th Annual Getzlaf Golf Shootout Sept . 13 – 14 to Benefit CureDuchenne
By NB Indy Staff
CureDuchenne , a Newport Beachbased nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy , will partner once again with NHL All-Star and retired Anaheim Ducks captain Ryan Getzlaf for the 13th annual Getzlaf Golf Shootout at Monarch Beach Golf Links on September 13 and 14 , 2024 .
Hosted by Ryan Getzlaf and his wife Paige , this annual event brings together professional athletes , celebrities , and community leaders for an unforgettable two-day experience , including an MVP Dinner reception followed by an action-packed day of golf and activities at the stunning Monarch Beach Golf Links in Dana Point .
Getzlaf played an impressive 17-year career with the Anaheim Ducks , holding the record as the franchise ’ s all-time leading scorer and serving as team captain . He also won gold medals with the Canadian hockey team at the 2010 and 2014 Winter Olympics .
Over the past 12 years , the Getzlaf family has raised more than $ 5.8 million through the Getzlaf Golf Shootout , funding early-stage research and accelerating new therapies for Duchenne muscular dystrophy .
“ We are incredibly grateful for the unwavering support we receive year after year ,” said Ryan Getzlaf . “ The impact we ’ re making on the Duchenne community is profound , and with the continued support of our generous community , we are closer than ever to finding a cure for this devastating disease .”
CHARITY SPOTLIGHT
Duchenne muscular dystrophy , one of the most common and severe forms of muscular dystrophy , is a fatal genetic disease affecting roughly 1 in 5,000 male births . Individuals with Duchenne are typically diagnosed as toddlers , lose the ability to walk in their early teens , and often succumb to the disease in their mid-20s .
Since CureDuchenne was founded in 2003 , the organization has invested more than $ 26M in research and has funded 18 research projects that have advanced to human clinical trials .
“ We are eternally grateful to the Getzlafs , our generous community , donors , and athletes who support the Getzlaf Golf Shootout every year and make the fundraiser such a tremendous success ,” said Debra Miller , founder and CEO of CureDuchenne . “ Research is moving faster than ever before , and we ’ ve made significant progress , but for individuals living with Duchenne , a cure cannot come soon enough . Every dollar raised is crucial in helping us get closer to a cure .”
The golf tournament on September 13 will feature the Ducks Power Players , games , and giveaways throughout the course , including a dunk tank and hole-inone opportunities to win a luxury car . Food and beverages will include a gourmet breakfast , on-course food provided by the Butchery and Crepe Story , and beverages provided by Brewery X , Happy Dad , and Califino as well as B12 shots provided by the
Project Self-Sufficiency in Newport Beach Names Waukecha Wilkerson Chief Development Officer
By NB Indy Staff
Waukecha Wilkerson has been named Chief Development Officer of Newport Beach-based Project Self-Sufficiency , a nonprofit whose mission is to help low-income single parents graduate from college or vocational training with the skills necessary to achieve economic independence .
As an experienced senior policy analyst and advocate in the student parent space , a successful graduate of Project Self-Sufficiency ’ s ( PSS ) scholar program , and the former
L to R : Paul Miller , Debra Miller , Hawken Miller , Ryan Getzlaf
President of the organization ’ s Board of Directors , Wilkerson is uniquely positioned to lead PSS ’ s fundraising initiatives , donor and partner relationships and community outreach .
Wilkerson also founded Won ’ t She Do It , a firm that provides coaching and development training directly to student-parents .
She holds her Bachelor ’ s degree in Psychology from Sacramento State University and currently is pursuing
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Waukecha Wilkerson
Hydration Room .
For more information about the Getzlaf Golf Shootout , please visit www . getzlafgolf . org .
Twenty years ago , CureDuchenne was created with one goal : to find and fund a cure for Duchenne muscular dystrophy , one of the most common and severe forms of muscular dystrophy . Today , CureDuchenne is recognized as a global leader in research , patient care , and innovation for improving and extending the lives of those with Duchenne . CureDuchenne ’ s innovative venture philanthropy model has advanced transformative treatments for Duchenne muscular dystrophy , including 18 projects that advanced to human clinical trials and multiple projects to overcome the limitations of exon-skipping and gene therapy .
In addition , CureDuchenne contributed early funding to the first FDA-approved Duchenne drug , pioneered the first and only Duchenne physical and occupational therapist certification program and created an innovative biobank and data registry , accelerating research toward a cure .
For more information on how to help raise awareness and funds needed for research , please visit www . cureduchenne . org .
Grants
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Grant will provide funds for renovation and repairs for the shelter .
• WISE Place will support its Steps to Independence Primary Project , which provides services to unaccompanied women , giving them safe housing and a comprehensive suite of wraparound services . The Decorative Arts Society ( DARTS ), established in 1995 , is a membership organization that offers an annual lecture series by nationally and internationally renowned experts in the decorative arts , including interior design , architecture , landscape , fashion , and other aspects of the arts .
Through subscriptions , donations , and other fundraising , the Decorative Arts Society provides grants to Orange County charities serving women , children , and families .
For more information on the Decorative Arts Society and membership opportunities , please visit www . decorativeartssociety . net .