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newportbeachindy . com DECEMBER 22 , 2023 3
CHARITY SPOTLIGHT
CureDuchenne Raises More Than $ 1.3 Million at Ninth Annual Napa in Newport
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Paul Miller , Hawken Miller , Debra Miller
By Christopher Trela | NB Indy
More than 40 acclaimed Napa Valley Vintners came together to raise funds to help cure Duchenne muscular dystrophy at the annual Napa in Newport held on Saturday , Nov . 4 at the Waldorf Astoria Monarch Beach Resort in Dana Point .
Hosted by Newport Beach-based CureDuchenne and Vintner Chair Melka Estates , the event raised more than $ 1.3 million to fund research toward a cure for Duchenne muscular dystrophy , one of the most common and severe forms of muscular dystrophy . More than 400 of Orange County ’ s top business leaders , influencers , entrepreneurs , philanthropists , and wine connoisseurs attended the event that began at 6 p . m . with a grand tasting featuring several hundred superb wines available for sampling as well as decadent caviar tastings from The Caviar Company and tray-passed appetizers .
A beautiful spiral-bound Napa in Newport handbook included bios of all the wineries as well as a list of the live auction items and event sponsors . Once the tasting concluded at 7 p . m ., attendees made their way to the grand ballroom for a dinner created by renowned Chef Ken Frank of La Toque in Napa . Each table had a vintner pouring their wines to accompany the dinner .
The menu began with salade nicoise moderne with blue prawns , octopus confit , pepper seared big eye tuna , farmer ’ s market beans , and roasted tomato vinaigrette .
Main course was dry aged prime angus New York strip steak with Fiscalini cheddar pearl tapioca and Rutherford red wine sauce .
The dessert course featured medjool date toffee sticky cake .
As dinner commenced , Newport Beach residents Debra and Paul
Miller – founders of CureDuchenne – welcomed everyone to Napa in Newport . As attendees dined , a lively live auction ensued featuring a stunning collection of wine and dining experiences , exotic excursions , golf packages and other items , all of which received high bids from the enthusiastic crowd . Attendees also raised their paddles to help CureDuchenne fund a cure .
Event sponsors included Porsche , The Caviar Company , and JCB .
The event benefited CureDuchenne , a global leader in research , patient care and innovation for improving and extending the lives of those living with Duchenne , a disease that occurs in roughly 1 in 5,000 male births and is 100 percent fatal .
Since CureDuchenne was founded in 2003 , the organization has raised more than $ 50 million for research and funded 18 research projects that have advanced to human clinical trials . To date , Napa in Newport has raised more than $ 10.6 million for CureDuchenne .
“ We ’ re eternally grateful to our dedicated vintners , sponsors and attendees who continue to make Napa in Newport a huge success year after year , allowing us to come closer to a cure for this devastating disease than ever before ,” said Debra Miller , founder and CEO of CureDuchenne . “ Funding is extremely critical as we continue to make progress in Duchenne research , and we could not do it without the steadfast support of our local community and partners .”
Guests had the opportunity to experience exquisite wines from worldclass vintners , including this year ’ s Vintner Chair , Melka Estates .
The event ’ s theme , “ Time is of the Essence ,” focused on the urgent need to bring treatments to the thousands
CUREDUCHENNE Page 11
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