IN THIS ISSUE
2 NARCOMS Info Corner
3 Director’ s Letter
4 FEATURE FOCUS
What is Frailty and How Does it Affect MS?
10 Snapshot
Tracking Frailty Through
Everyday Activities
12 MS News
The Impact of Frailty on Neurological
Diseases: Sex and Gender Matter
Can Ocrelizumab Slow Disease Progression in Older People with Primary Progressive MS
Study Links Frailty to Greater Disability In Progressive MS
14 Word Play
15 MS Messenger
INFO CORNER
What Is NARCOMS?
NARCOMS is a registry for people who have multiple sclerosis( MS). Registry participants complete two surveys each year to provide information about themselves and their experience living with MS. Data from these surveys are used in research studies to further the understanding of MS. Participation in the registry is voluntary, and responders’ identity and privacy are carefully secured.
What Is The Goal Of NARCOMS?
The NARCOMS Global MS Patient Registry helps to facilitate research about multiple sclerosis in North America and around the world. Collaboration between MS centers of excellence throughout the world helps to increase knowledge, improve clinical care, and enhance the quality of life for persons with MS.
How Private Is My Information?
We will keep the information that you provide us private and confidential by storing your data in a secure database. All information will be used for research purposes only. We do not share any personally identifying information with any person or research institution. We follow all Federal( HIPAA) laws regarding confidentiality.
The publication of NARCOMS Now is generously supported, in part, by the following corporate sponsors. Articles and information presented in NARCOMS Now are written independently and are not subject to review by the sponsor prior to publication.
Not Yet A NARCOMS Participant?
Please contact us at 214-648-4583 To enroll online, visit www. NARCOMS. org
Tell Us Your Thoughts!
Have an idea? We would love to hear from you! Send us your questions, comments, and suggestions.
Email: MSRegistry @ narcoms. org Online: www. narcoms. org / contact-us
2 | NARCOMS. org