IN THIS ISSUE
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4 FEATURE FOCUS Engagement And Education : How The MS Community Advances Research And Improves Lives
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NARCOMS Info Corner
Director ’ s Letter
SNAPSHOT
Learning From The NARCOMS Surveys
MS NEWS
Physiotherapy Is Recommended For All Individuals With MS
Word Search
MS Messenger
What is NARCOMS ?
INFO CORNER
NARCOMS is a registry for people who have multiple sclerosis ( MS ). Registry participants complete two surveys each year to provide information about themselves and their experience living with MS . Data from these surveys are used in research studies to further the understanding of MS . Participation in the registry is voluntary , and responders ’ identity and privacy are carefully secured .
What is the goal of NARCOMS ?
The NARCOMS Global MS Patient Registry helps to facilitate research about multiple sclerosis in North America and around the world . Collaboration between MS centers of excellence throughout the world helps to increase knowledge , improve clinical care , and enhance the quality of life for persons with MS .
How private is my information ?
We will keep the information that you provide us private and confidential by storing your data in a secure database . All information will be used for research purposes only . We do not share any personally identifying information with any person or research institution . We follow all Federal ( HIPAA ) laws regarding confidentiality .
Not yet a NARCOMS participant ?
Please contact us at 214-648-4583 To enroll online , visit www . NARCOMS . org
Tell us your thoughts !
Have an idea ? We would love to hear from you ! Send us your questions , comments , and suggestions . Email : MSRegistry @ narcoms . org Online : www . narcoms . org / contact-us
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