Handan Boztepe Assistant of Professor Hacettepe University Hacettepe University, Nursing Faculty, Child and D TR boztepehandan @ gmail. com Research Assistant Ayse Ay Hacettepe University Hacettepe University, Nursing Faculty, Child and D Ankara TR ayse0526 @ gmail. com Professor Leanne Monterosso Centre for Nursing and Midwifery Research St John Centre for Nursing and Midwifery Research St John Murdoch AT leanne. Monterosso @ sjog. org. au
A CROSS-SECTIONAL STUDY TO IDENTIFY THE INFORMATIONAL AND CARE NEEDS OF PARENTS OF CHILDREN WITH CANCER IN TURKEY
Aim: The aim of this study was to determine the perceived needs of parents of children with cancer in Turkey. Background: Determining the needs of parents of children with cancer has been an important issue in the care of children with cancer and their families. Determination of the needs of these parents would provide significant data for services to be planned for these parents. Design: Crosssectional design Methods: A self-administered questionnaire was completed by 180 parents whose children( 0-18 years old) were diagnosed with leukemia, solid tumors, and central nervous system tumors. Results: The needs of the parents were determined as providing explanations to them in comprehensible language( 100 %), being informed about changes occurring in their child ' s condition, and being aware of when and why the treatment plan of the child changes. Additionally, the needs to know how to cope with the feelings of their other children( 76 %), to know how to inform their other children in a manner appropriate for their ages( 77 %), and to know what information to share with their other children that is appropriate for their ages( 77 %) were specified by parents as being less important. Conclusions: Parents of children with cancer currently experience unmet needs related to receiving clear information and being informed of changes in their child ' s condition and treatment plan. It is incumbent upon nurses to facilitate these aspects of care in collaboration with the multidisciplinary team.
Keywords: Parents, Pediatric Cancers, Met and unmet needs
Congress Topics: Connecting, Sharing and Learning in Nursing
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