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FOR SUPPORT, D’AGOSTINO RECOMMENDS THESE GROUPS Share Cancer Support For women with breast or ovarian cancer • sharecancersupport.org Living Beyond Breast Cancer Programs and services to help people whose lives have been impacted by breast cancer • lbbc.org Cancer Care Free professional support services • cancercare.org Breast Cancer Research Foundation Promoting research to prevent and cure breast cancer • bcrf.org Metastatic Breast Cancer Alliance Help in finding the right resources and treatments • mbcalliance.org The National Cancer Institute The nation’s leader in cancer research • cancer.gov Metastatic Breast Cancer Awareness, Research and Support metavivor.org A SENATOR’S SUPPORT Sen. Cory Booker meets with D’Agostino to hear her story of how the Affordable Care Act helped her receive medical care. her brain, and enlarged lymph nodes in her abdomen. “It’s like a game of whack-a-mole,” she says. “But that’s metastatic breast cancer, and there’s no cure for it.” FACING SURGERY With her new focus on the can- cer in her brain, D’Agostino started looking for a neuro-oncologist. On July 31, she had gamma knife surgery, during which precision radiation was directed at her brain tumors, at CINJ. Her treatment options expanded when, after two and a half years of living on Medicaid with a disability, she was allowed to switch to Medicare, and could see doctors outside of New Jersey. Today, she sees Dr. Kevin Kalinsky, a breast oncologist at NewYork-Presbyterian Hospital/ Columbia University Medical Center who uses tumor genomics to research new breast cancer therapies for the National Cancer Institute. He is looking for a drug trial that treats one of her breast cancer mutations, and has put her on a drug called Xeloda, which she takes one week on, one week off. In mid-September, her tumor markers were going down. “I’ll stay on it indefinitely, until I can’t stand it anymore, or tumors start growing,” she says. “Or there’s another trial I want to get on.” Reflecting on how she manages to keep going, she credits the example of her resilient parents and the expe- riences of others she’s met in sup- port groups. “And,” she adds, “I’m a Scorpio, southern Italian and a Jersey girl — maybe that has something to do with it?” ■ Are You Dense? A resource for women with dense breast tissue • areyoudense.org Cancer Support Community Central New Jersey Providing psychosocial support services to address the emotional and social effects of cancer • cancersupportcnj.org Meal Train Helps friends and family organize meals • mealtrain.com HELP FINDING CLINICAL TRIALS Clinicaltrials.gov A database of privately and publicly- funded clinical studies around the world Driver.xyz A platform that connects cancer patients to treatments and research worldwide SmartBridge Health ($399) A highly-qualified cancer doctor will research clinical trials best suited to you and provide a summary of treatment options MONTCLAIR MAGAZINE FALL 2018 43