Louisville Medicine Volume 63, Issue 8 | Page 16

HOME IS WHERE THE SUN SETS Aaron Burch T here’s an inconspicuous two-story brick house on Adams Street in Butchertown. Because the neighborhood is full of old homes, this one hardly makes an impact on the naked eye. Other than a small sign out front, there’s no reason to know it as anything but a residence. treatment, then they wouldn’t be able to visit their friend at the end of their life,” Cassidy said. “Hospitals are a terrible place to die, especially without our loved ones around.” But 114 Adams Street is full of surprises. Not only was it a former convent of the Ursuline Sisters, but beginning this month, it will host those in need as the home of Hildegard House, Kentucky’s first comfort care home for those in the final days of their lives. Inside the home are bedrooms for residents, a kitchen, several rooms shared for community or kept for privacy, as well as an office and living space for Executive Director Karen Cassidy, who has shepherded Hildegard House from inception to its grand opening. Cassidy is a geriatrics and palliative care nurse practitioner with more than 35 years of experience in health care. Alongside Dr. Ruth Simons, Cassidy oversaw palliative care at Sts. Mary & Elizabeth Hospital and Jewish Hospital. It was there that her passion for taking care of those in need inspired her to take action. “I was pretty distressed at the way we had to discharge patients who didn’t have any homes or families,” Cassidy said. “Elderly people whose spouse had died, those who didn’t have any children or whose family was far away, these people couldn’t access outpatient hospice services because you must have a caregiver. If they were on Medicaid and no beds were open in Kentucky, a lot of times they would seek care in Indiana or Tennessee where they would die among total strangers.” One elderly woman’s predicament provided the turning point in which Cassidy knew something had to be done. The woman lived alone in a high rise, and her family consisted of three other elderly women who happened to play bridge together. “She got septic and was dying, and these other ladies would come and visit her by bus. The other women were panicking because they knew that if the doctors sent her somewhere for 14 LOUISVILLE MEDICINE Cassidy and another nurse at Sts. Mary & Elizabeth found an article about a comfort care home in Syracuse, New York, and went up for a visit. “After we got back, we knew Louisville needed one as well, but nobody had time to get it going.” Unsure of what to do with her life, Cassidy began writing up a business plan for what would become Hildegard House in early 2014. The plan was completed in April of that year. Miraculously, the articles of incorporation were approved in just six weeks during the summer. By September, Hildegard House was a full-fledged non-profit organization. A Hildegard House Board of Directors was soon put together including several members of Louisville’s charity community and featuring physician oversight from Board Chair Dr. Ruth Simons and Medical Director Dr. Kenneth Anderson. Dr. Anderson is a pulmonologist at Baptist Health where he also serves as vice president and chief medical officer. Upon being asked to assist with Hildegard House, he jumped at the opportunity. “I see my position as two-fold,” Dr. Anderson said. “I can elect to be the physician of record through hospice because I’ll be working with staff and volunteers. And as medical director, I can also help set up policies, staffing and education.” He anticipates that many of the volunteers at Hildegard House will be nurses or medical students. “Some of our policies will have a hospital feel to them, but we will rarely need IVs or more complicated equipment. More important for Hildegard House is treating the patients well. Patient safety, patient satisfaction, patient everything - just as we strive for here at the hospital, but with an intense focus on comfort.” Hildegard House will partner significantly with Hosparus of Louisville to provide that comfort in each resident’s final days. “We truly believe that people who are dying should get to manage their own process. We’re just accompanying them. Our volunteers will take the cues, but the residents are driving the train,” Cassidy explained. “We know our bodies are shutting down at the end of life, so we want to make sure people are comfortable and have dignity.” Hildegard House will have a small paid staff including day and night time nurses. Everyone else will work on a volunteer basis, spending four hours with “their” resident and one hour working on other projects. Volunteers will also be given bereavement assistance. Instrumental in the coordination and planning of Hildegard