Journal of Rehabilitation Medicine 51-4inkOmslag | Page 12

246 C. Kiekens et al. • If there is no theory behind the ICF, don’t we need to develop theories, in particular on the interaction of the ICF domains (e.g. interaction between parti- cipation and environmental factors)? • The ICF is not normative; however, some problems still exist. One problem is that, with the use of the ICF from the background of human rights, a highly normative aspect comes in. And, secondly, how to solve the problem of the absence of the classification of the personal factors? They have not been classified because this would have questioned the neutrality of the classifications on the background of societal norms. As personal factors do exist, a debate on the dilemma of societal norms and personal factors needs to be held. According to Gutenbrunner it seems that a lot of work is still needed on the theoretical foundation of the ICF (or, at least, of its understanding and use). The model or theory of “social productivity” (3) has been described as being able to explain important factors of the interaction of an individual with society. Here too, some questions remain unanswered: • The theory of social productivity has been (mainly) developed and proven in industrialized countries. The questions arise as to whether it is universal and applicable to other societies, and what are the cultural factors influencing productivity and its perception. • It must be acknowledged that different theories concerning social integration and well-being exist. Is there an approach to integrate different theories? • The model of social productivity uses a number of assumptions, e.g. using terms such as well-being, including relevant factors of influence and an action- reaction model. How much clarity (and consensus) do we have with regard to these assumptions? In summary, to Gutenbrunner the theory of social pro- ductivity is an important approach to better understand “functioning as an interaction of persons with health conditions and the environment”. However, many questions remain unanswered and need both a theoreti- cal approach and a proof of concept by collecting data. Antti Malmivaara commented from a health econo- mics point of view using 2 perspectives: the healthcare perspective and the social perspective. The healthcare perspective focuses on advancement of health among individuals and within populations, and on resource use and respective costs within the healthcare system. The societal perspective also includes indirect costs: the most important arising from sick leave and disa- bility pensions. The healthcare perspective concords with the perspective of an individual as a recipient of healthcare. For an individual, perceived well-being is of great importance, and as well as the functioning www.medicaljournals.se/jrm and participation operationalized by the ICF. In the healthcare perspective cost-effectiveness and cost- utility analyses are restricted to the benefits and costs within the healthcare system. However, the ability to work, whether paid or voluntary, may be an important part of well-being and functioning. In the societal per- spective, all benefits and costs due to the healthcare system are included, but, in addition, also the changes in productivity due to sickness. Also, voluntary work may have incremental monetary value to society, and should be considered in the societal perspective. Mal- mivaara concluded that the EARM Academic Debate provided points, which may also be utilized in health economic thinking. The open plenary discussion was started by Henk Stam, who questioned the effect of productive activity, such as work in a cultural context across different regions in the world. Mauro Zampolini added that the underlying mechanism to well-being induced by productivity is mostly the reward, which, in fact, can also be caused by other satisfying activities. Anne Chamberlain stressed that there are huge individual variations in how “the reward” is obtained, for example in artists who may have to wait years before they are successful (and rewarded). Finally, Diane Playford referred to “caring” as a specific activity, citing the 20th century philosopher Milton Mayeroff (6). Thus, caring too could be considered as a “rewarding” activity that could be linked to well-being. In summary, there was no conclusion on whether theory-based approaches may use or relate to the ICF at this point. Whereas the ICF was meant to be theory neutral, implementing it for data collection remains a difficult task. The ICF, as a framework, could be a basis for theory development. Siegrist argued with findings from empirical research, that a theory of social productivity can explain links between participation and well-being. However, during the debate with the academy members a consensus could not be obtained. Quality of life remains difficult to measure and there may be theories that could assist in gaining insights. More reflection and research seem necessary to further develop and study these concepts. After the debate, an additional comment was written by Stefano Negrini, who agreed that the ICF cannot be normative or, at least, should try not to be. To Negrini, preserving the ICF as such would anyhow be a mistake: instead we must make it evolve. Classifications are like languages, since they allow all of us to use the same terms to describe the same health condition. According to Negrini, participation topics are at the stage probably the least well represented in the ICF, and refinement in that area should probably be higher than in others. In relation to the debate, the problem