Journal of Rehabilitation Medicine 51-1CompleteIssue | Page 45

42 S. Tarvonen-Schröder et al. Table I. Demographic and clinical data for the participants with complete and partial tetraplegia and paraplegia Variables Age, years, mean (SD) Years since diagnosis, mean (SD) Number of comorbidities, mean (SD) Charlson comorbidity index, mean (SD) Education in years, mean (SD) Sex, male, n (%) Still working, n (%) Cohabiting, n (%) Institutionalized, n (%) Aetiology Traumatic Spinal stenosis/ myelopathy/tumour AIS grade A/B/C/D Segment C1–4/C5–7/Th1–11 Th12–S2/S3–5 Total (n  = 142) Tetraplegia AIS A–B (n  = 13) Tetraplegia AIS C–D (n  = 58) Paraplegia AIS A–B (n  = 23) Paraplegia AIS C–D (n  = 48) 56.7 (16.9) 8.8 (9.8) 1.1 (1.0) 0.5 (0.7) 11.5 (2.6) 75 (52.8) 19 (13.4) 82 (57.8) 8 (5.6) 52.3 (16.5) 12.1 (10.8) 0.8 (0.8) 0.5 (0.7) 11.5 (2.4) 10 (76.9) 1 (7.7) 5 (38.5) 4 (30.8) 61.2 (15.8) 6.4 (9.3) 1.1 (1.1) 0.3 (0.7) 12.4 (4.0) 28 (48.3) 8 (13.8) 31 (53.4) 3 (5.2) 53.2 (18.6) 10.6 (10.5) 1.1 (1.1) 0.6 (0.9) 10.6 (2.8) 13 (56.5) 2 (8.7) 14 (60.9) 1 (4.4) 60.0 (16.6) 6.2 (8.4) 1.4 (1.2) 0.6 (0.8) 11.4 (3.0) 24 (50.0) 8 (16.7) 32 (66.7) 0 (0.0) ns ns ns ns ns ns ns ns 17 (29.3) 16 (69.6) 14 (29.2) 0.0001 57 (40.1) 10 (76.9) 74 (52.1)/8 (5.7)/3 (2.1) 27 (19.0)/9 (6.3)/17 (12.0)/89 (62.7) p-value 6 (4.2) a /7 (4.9)/107 (75.4) 18 (12.7)/4 (2.8) a Three with ventilatory aid. AIS: ASIA (American Spinal Cord Injury Association) Impairment Scale; ns: not significant; SD: standard deviation. Table II. Physician-rated generic set scores by severity and level of spinal cord injury Variable Tetraplegia AIS A–B (n  = 13) Mean (SD) Tetraplegia AIS C–D (n  = 58) Mean (SD) Paraplegia AIS A–B (n  = 23) Mean (SD) Paraplegia AIS C–D (n  = 48) Mean (SD) p-value Generic set sum score (0–28) Energy and drive functions (0–4) Emotional functions Sensation of pain Daily activities Walking Moving around Remunerative employment 25.2 (6.1) 0.9 (0.8) 1.1 (1.0) 1.8 (1.2) 2.9 (1.2) 4.0 (0.0) 4.0 (0.0) 3.8 (0.6) 15.6 (4.0) 1.2 (0.8) 1.2 (0.8) 1.9 (1.0) 1.9 (1.0) 2.3 (1.0) 3.4 (0.9) 3.6 (0.8) 18.4 (2.9) 1.1 (0.8) 1.2 (0.8) 1.8 (1.1) 2.4 (0.7) 4.0 (0.2) 4.0 (0.0) 3.8 (0.5) 15.0 (4.0) 1.0 (0.8) 1.1 (0.9) 1.9 (0.9) 1.6 (0.8) 2.5 (0.9) 3.5 (0.6) 3.5 (1.0) < 0.001 ns ns ns 0.0001 < 0.0001 < 0.001 ns Score of each item 0–4, 0 = no difficulty, 4 = total inability. AIS: ASIA (American Spinal Cord Injury Association) Impairment Scale. (tetraplegia, n = 71) were compared with those with a more caudal lesion (paraplegia, n = 71), no between- group differences were found. When functioning was rated by patients and their significant others (WHODAS 2.0, Table III), the total disability score showed severe impairment in all patient groups. Difficulties reported in cognition, participation, and relationships remained mild, with the exception of moderate impairment in community life in those with a partial tetraplegia. All patient groups reported severe difficulties in standing, walking, and working ability, the restrictions being most severe in those with tetra- plegia. When comparing tetraplegic and paraplegic groups, similar between-group differences were also Table III. Functioning assessed with patient and proxy WHODAS 2.0 by severity and level of injury Rated by patients Rated by significant others Variables Tetraplegia AIS A–B (n = 13) Mean (SD) Tetraplegia AIS C–D (n = 58) Mean (SD) Paraplegia AIS A–B (n = 23) Mean (SD) Total score (0–48) Standing (0–4) Household tasks Learning Community life Emotional functions Concentrating Walking Washing oneself Dressing oneself Dealing with strangers Maintaining friendships Working ability 25.2 (6.1) 3.9 (0.3) 3.2 (1.3) 0.2 (0.4) 0.9 (1.4) 1.6 (1.4) 0.3 (0.8) 4.0 (0.0) 3.5 (0.9) 3.2 (1.1) 0.8 (1.0) 0.7 (1.0) 2.9 (1.7) 21.0 (10,2) 18.8 (6.1) 2.9 (1.4) 4.0 (0.0) 2.6 (1.3) 1.9 (1.4) 0.3 (0.5) 0.2 (0.4) 1.8 (1.4) 1.1 (1.0) 1.8 (1.1) 1.2 (1.0) 0.7 (1.2) 0.5 (0.9) 2.9 (1.4) 4.0 (0.0) 1.9 (1.5) 1.4 (1.2) 1.8 (1.4) 1.4 (1.2) 0.5 (0.9) 0.3 (0.9) 1.1 (1.3) 0.6 (0.9) 2.8 (1.5) 2.2 (1.6) Paraplegia AIS C–D (n = 48) Mean (SD) p-value 16.3 (8.8) 3.0 (1.3) 2.1 (1.3) 0.2 (0.4) 1.4 (1.1) 1.3 (1.0) 0.5 (0.8) 2.8 (1.5) 1.3 (1.4) 1.3 (1.4) 0.3 (0.7) 0.4 (0.6) 2.1 (1.5) < 0.01 25.9 (8.6) 0.0001 3.9 (0.3) < 0.01 2.8 (1.6) ns 0.4 (0.7) < 0.05 1.0 (1.3) ns 1.7 (1.6) ns 0.6 (1.3) 0.0001 4.0 (0.0) < 0.0001 3.6 (0.7) < 0.0001 3.2 (1.1) ns 0.8 (1.2) < 0.01 1.1 (1.2) ns 2.8 (1.7) Score of each item 0–4, 0 = no difficulty, 4 = total inability. AIS: ASIA (American Spinal Cord Injury Association) Impairment Scale; ns: not significant. www.medicaljournals.se/jrm Tetraplegia AIS A–B (n = 10) Mean (SD) Tetraplegia AIS C–D (n = 29) Mean (SD) Paraplegia AIS A–B (n = 17) Mean (SD) Paraplegia AIS C–D (n = 29) Mean (SD) p-value 21.6 (9.7) 2.9 (1.2) 2.6 (1.4) 0.2 (0.5) 2.0 (1.1) 2.0 (1.1) 0.7 (0.9) 2.8 (1.3) 1.9 (1.4) 1.9 (1.4) 0.6 (0.9) 1.2 (1.4) 2.9 (1.4) 19.7 (6.5) 4.0 (0.0) 2.1 (1.5) 0.3 (0.6) 0.9 (0.9) 1.2 (0.8) 0.5 (0.8) 4.0 (0.0) 1.9 (1.4) 1.6 (1.4) 0.2 (0.6) 0.8 (1.1) 2.3 (1.6) 17.8 (9.5) 2.9 (1.4) 2.3 (1.4) 0.3 (0.7) 1.7 (1.3) 1.5 (1.1) 0.6 (0.9) 3.0 (1.3) 1.4 (1.6) 1.3 (1.4) 0.4 (0.7) 0.4 (0.6) 1.9 (1.6) ns < 0.01 ns ns < 0.05 ns ns < 0.001 < 0.01 < 0.01 ns ns ns