Island Life Magazine Ltd October/November 2014 | Page 35

ISLAND LIFE MAGAZINE Reading to highlight dementia T he reading of a play, written by acclaimed playwright Brian Daniels and inspired by two families involved in living with the heart-breaking illness of dementia, is to be performed on the Island November 18. Two performances of 'Don't Leave Me Now’ will take place at the Quay Arts Centre, Newport. They will be the final 'rehearsed readings' as the play is expected to go into full production and tour nationally in 2015. Brian’s previous plays 'Where's Your Mama Gone', 'A Big Day for the Goldbergs' and 'The Good and the True' have been produced nationally and internationally. He is Artistic Director of the New End Theatre Beyond and has produced more than 200 new plays and shows over the last 20 years. Brian explained why he chose to write a play on such a difficult subject, which has affected so many families here on the Island, and nationwide. He said: “In 2011 I was asked by my friend Rachael if I would read a journal she had written about living with dementia. Her long-term partner Irene had developed this devastating illness when she was in her 50s and in 2011 was in full time care. "I had known Irene when she was well; a vibrant, charismatic, larger than life English teacher. When I read Rachael's journal I became acutely aware of the terrible effects of this illness, not only on the sufferer but on those closest to them and their wider family and friendship circle. I asked Rachael if Irene would remember me if I visited her in the care home. I was unprepared to meet what Irene had become. She was confined to a wheelchair, no speech, her head bowed and unresponsive to my visit or to anyone else in the room. She was 64 years old and would live another two years. “I read Rachael's journal and learned a great deal about the recognition of early signs of dementia, the mood swings, the loss of motor skills, the denial routine and all the time trying to 'keep up appearances'. I wanted to write their story as a play. “I also met Cindy Toulman. Cindy, who visited her husband Chris every day in the care home. Chris was confined to bed, could no longer speak or demonstrate any signs of recognition, but still Cindy came "In both stories there was absolute devotion based on love - I wanted to ask whether the love was diluted when duty took over." and talked to him all day, fed him and nurtured him. It is doubtful he would have known she was there at all. “In both stories there was absolute devotion based on love - I wanted to ask whether the love was diluted when duty took over. It appeared not to be. I wanted to write a play inspired by these two family units. “I called the play 'Don't Leave Me Now' after the Jacques Brel song 'Ne me Quitte Pas' - it has connotations of taking leave mentally, emotionally and physically. We learn what our characters were like when they were well and had everything to live for. We never know what the future holds.” Brian added: “When Lady Sally Grylls heard about the play through her contact with Dementia UK she attended a reading and immediately wanted us to bring a performance to the Isle of Wight.” www.visitilife.com 35