Huffington Magazine Issue 38 | Page 37

Home Funerals Add Intimacy to the Grieving Ritual By Jaweed Kaleem A little over five years ago, MARTIN GEE Alison and Doug Kirk held their 9-year-old daughter’s hand as she lay on a futon in their Nashville living room, told her they loved her, and watched her take her last breath. ¶ The Kirks had known for a long time that their little girl, Caroline, would die. In her last weeks, she was under hospice care, lived off an oxygen machine, was fed through a tube, and spoke only in small murmurs. It was the normal course for a child born with Niemann-Pick, a terminal disease that gradually leads to the breakdown of the nervous system, brain and lungs. ¶ What happened after Caroline’s death was anything but typical. PHOTO OR ILLUSTRATION CREDIT TK