HeadWise HeadWise: Volume 2, Issue 2 | Page 7

Chat with a Headache Specialist

Support the Libby Fund

Libby Kandel, now 16, began getting migraines when she was just 10 years old. Eventually she developed a severe headache that rendered her unable to speak or use her right hand. She was diagnosed with hemiplegic migraine, a rare form of migraine sometimes accompanied by temporary motor paralysis on one side of the body and / or numbness on one side of the body.

So far, no treatment has brought Libby relief. In August 2011, she decided to form the Libby Fund at the NHF to increase public awareness and funding for research into causes and cures of hemiplegic migraine. A fundraiser was held March 18, 2012, in Scarsdale, NY. To learn more about the Libby Fund and donate to the cause, visit www. headaches. org / content / libby-fund.

Global Awareness

When you suffer from headache, you feel that you are alone with your pain. The International Association for the Study of Pain( IASP) is dedicating the next year to changing that perception.
IASP launched the 2011 – 2012 Global Year Against Headache to bring muchneeded attention to the painful, often disabling condition. The campaign, which lasts until October 2012, will focus on providing headache education for health care professionals and government leaders, as well as general public awareness across the globe. The goal is to mobilize IASP’ s 7,000 + members and 86 national chapters to forge partnerships with other organizations and improve pain treatment for all types of headache sufferers.
Announcement:
NHF is saddened to report the loss of Donald W. Lewis, MD, an active member of the headache community and chairman of the Eastern Virginia Medical School Department of Pediatrics. Dr. Lewis passed away from a cerebral hemorrhage on February 17, 2012, at the age of 60.
Libby’ s parents, Emily and Paul Kandel, welcome attendees at the fundraiser for the Libby Fund.
Chat with a Headache Specialist
NHF is hosting several live chats in 2012, offering members and visitors to the NHF website a chance to interact with headache specialists in an online environment. Each chat is assigned a topic and a headache specialist who answers questions in real time. Since the first chat in December 2011, NHF has hosted more than 10 live chats on topics such as fibromyalgia, stroke, allergy headache and more. Remaining topics for 2012 tentatively include: n Pregnancy and headache n Sexual headache n
Eye and headache n Sports and headache n Medication overuse
Mark Green, MD, a member of the NHF Board, presents at the fundraiser for the Libby Fund. n And more The number of participants for each chat is limited. To be a part of an upcoming chat, register on the NHF website at www. headaches. org / content / nhf-chat-room. If you have ideas for new chat topics, send an e-mail to info @ headaches. org.
www. headaches. org | National Headache Foundation 5