Guidebook | Page 6

A Message from the Editors Lawrence I. Golbe, MD, and Diane Breslow, MSW, LCSW

We are pleased to bring you the updated 2020 Edition of CurePSP’ s Guidebook. In the foundation’ s commitment to providing up-to-date information, we have revised and expanded upon the previous edition. We also hope the reorganized Table of Contents and the merging of some of the articles make the book easier to use and understand.

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The Guidebook is devoted to helping patients and families learn more about PSP and related diseases that we call“ prime of life” neurodegeneration. These diseases tend to strike( though not always) during middle age, when people often have careers, family responsibilities, and active lives. We realize that everyone affected by these diseases is at a different place in the journey. You and your loved one may not experience everything this book discusses. In addition, resources may vary depending upon where you live. Equally important, these diseases can carry with them profound emotions and changes that vary dramatically from one patient-family unit to another. Therefore, we want you to use the book as an ongoing resource for yourself and your family. A good approach might be to read material relevant to you at the time, rather than attempting to tackle the entire manual at once.

Whatever your needs might be, and whenever they occur, we want this book to be beneficial to you. Also, please contact CurePSP if you have questions or wish to request any other of the foundation’ s informational and educational materials. We want you to know that you are not alone. CurePSP— our staff, support group leaders, and volunteers— and all the families who have been through these diseases are your community of support.

Lawrence I. Golbe, MD Diane Breslow, MSW, LCSW