TABLE OF CONTENTS
A Message from CurePSP’ s Director of Clinical Affairs.................................... |
1 |
A Message from the Editors............................................................ |
2 |
A Message from the Chair of CurePSP’ s Patient and Carepartner Advocacy Committee..... |
4 |
Contributors............................................................. |
6 |
THE DISEASES...................................................... 7 PSP: Some Answers.................................................................... 8 CBD: Some Answers................................................................... 20 MSA: Some Answers................................................................... 26
MANAGING SYMPTOMS............................................ 29 Managing Cognitive and Behavioral Changes.......................................... 30 Dry Eye Syndrome and Visual Issues in PSP............................................. 31 Speech, Communication, and Swallowing.............................................. 33 Maintaining Good Oral Hygiene....................................................... 43 How Physical Therapy Can Help....................................................... 46
Adapting to Functional Changes: How an Occupational Therapist Can Help.............................................. 52
PSP and Constipation................................................................. 55 PSP and the Bladder................................................................... 57
MANAGING CARE AND GETTING PROFESSIONAL SUPPORT......................................... 59
Building Your Personal Advisory Team................................................ 60 The Carepartner Plan: A Guide to Assessing and Prioritizing Your Needs................ 62 Understanding Advance Healthcare Planning.......................................... 66 Compassionate Allowances............................................................ 72 The Social Worker’ s Role............................................................... 72
Understanding Levels of Home- and Community-Based Services and Residential Care.................................................................. 75