Another intriguing geographical cluster of PSP exists in a group of suburban towns in northern France. The area was the site of metal-related industry that contaminated the soil in that area over much of the 20th century. Investigations are now underway to narrow the long list of toxins that could explain this cluster and then assess the role of such toxins in PSP elsewhere.
How can I help research?
CurePSP welcomes donations to its research grants program. Since its inception in 1997, the program has provided over $ 10 million to institutions and senior researchers with excellent track records of productivity and to junior people with original ideas and first-rate training. CurePSP favors projects with the potential to produce preliminary findings that would support an application to a government agency for a much larger grant in the future. It does not restrict its grants to any country or continent.
The various national organizations that sponsor research in Parkinson’ s disease sometimes sponsor deserving PSP research. Their support of research in Parkinson’ s disease adds to our knowledge of PSP.
Another way to help research and yourself is to participate in studies of PSP if requested by a researcher. This may take the form of answering questionnaires, having medical examinations or tests, or taking experimental medication. There are so few people with PSP in any one geographical area that each person can make a very important contribution. Joining the mailing list at CurePSP will allow PSP researchers to contact you regarding participating in new research studies.
Should I join a support group?
There can be great value in joining a group of other people with the same problem. You can exchange helpful tips on ways to cope physically and psychologically with the limitations of the illness and can learn more about the problem and its treatment from guest speakers. Many large medical centers have a Parkinson support group that welcomes members with PSP. While there are far fewer people with PSP than Parkinson’ s in one geographical area, several dozen successful PSP support groups have been organized in the U. S., usually in more densely populated areas. All it takes is one organizer with some time and energy. See the CurePSP Support Groups chapter for information.
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