GloPID-R Roadmap for Data Sharing in PHEs | Page 32

1b. Where policies cannot be altered, align
grant/contract conditions to require sharing
of quality assured interim and final data in
real time. list 23 ) whether or not there is currently a PHE.
Align with WHO guidance on the importance
of sharing Pathogen Genetic Data and associ-
ated metadata in all outbreaks (prior to PHE).
Where funders cannot include rapid data
sharing requirements in policies, these
should instead be included in grant / con-
tract conditions for both grants awarded
in relevant outbreaks or PHEs and grants
awarded which may have relevance to future
outbreaks or PHEs (aligned with the best
practice for policies outlined above). The aim of GloPID-R’s data-sharing work is to ensure
rapid data sharing where it may result in significant
public health benefit. Rapid data sharing may be benefi-
cial in certain outbreaks or epidemics which don’t meet
the criteria for PHEs or PHEICs or even in inter-epidem-
ic periods. In these cases, rapid data sharing may even
enable a response which prevents a PHE or PHEIC. This
needs further development by GloPID-R.
Certain funders cannot include rapid data sharing
requirements for PHEs in policies where the policies
are institution wide or multi-institution. There is a
need to ensure grant / contract conditions cover the
scenario that relevant research is funded in advance
of an outbreak or PHE. 1d. Align funding policies to ensure that
data sets and pre-publications are all includ-
ed within assessment of researcher out-
puts (in accordance with the San Francisco
Declaration 7 ).
1c. Define appropriate thresholds for activa-
tion of rapid data sharing.
To include improved definition of triggers for
rapid data sharing with a low threshold (not
restricted to the trigger of declared PHEs or
PHEICs). Consider implementing rapid data
sharing requirements for all research on
outbreaks of novel/ emerging pathogens and
pathogens of public health interest (linked
to the WHO R&D blueprint priority pathogen
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Funders need to ensure that data sharing
activities, data sets and pre-publications
are all included within their assessment of
researcher outputs when considering grant
applications, in line with the San Francisco
Declaration on research assessment 7 (see
Annex B).
Ensuring alignment with the San Francisco Declaration
on research assessment is the most direct action
funders can take to address the perceived academic
disincentives to data sharing.