GloPID-R Roadmap for Data Sharing in PHEs | Page 3

TABLE OF CONTENTS 1. Executive summary 5 3. Challenges & potential solutions 17 Timely: challenges & potential solutions 19 2. Introduction 10 Thresholds for rapid data sharing 19 Purpose 11 Complexity of data sharing 19 Scope 11 Setting the scene 12 Trust and further cultural & behavioural factors 20 Academic publishing models & linked academic incentives 20 Statements, codes of conduct & commitments on data sharing in PHEs 12 Regulatory frameworks 20 GloPID-R commissioned work: Case Studies 14 GloPID-R commissioned work: Funders’ Review 14 Ensuring ethical standards 21 This roadmap 16 Ethical: challenges & potential solutions 21 Accessible: challenges & potential solutions 22 Commerical interests 22 Legal 22 Technical 22 Transparent: challenges & potential solutions 23 Cultural & behavioural 23 continued overleaf ... 3