GloPID-R Roadmap for Data Sharing in PHEs | Page 29

CHALLENGES OUTLINE RECOMMENDATIONS
Many funders do not have rapid data sharing
policies in place for PHEs and there is variability
in those that do exist. 1a. Align on policies for data sharing in PHEs to require sharing of
quality assured interim and final data in real time (wherever feasible).
The threshold for activation of heightened require-
ments for data sharing (PHE or PHEIC) is too high. 1c. Define appropriate thresholds for activation of rapid data
sharing.
Academic incentives for publishing restrict data
sharing. 1d. Align funding policies to ensure that data sets and pre-publi-
cations are all included within assessment of researcher outputs
(in accordance with the San Francisco Declaration 7 ).
Need for effective Data Management Plans
at study outset aligned with GloPID-R Data
Sharing Principles. 2a. Align to improve guidance for Data Management Plans in
grant applications.
Need for improved data management capacity. 2b. Support the development and uptake of standardised tools
and approaches to support international research collaborations
& data sharing, including MOUs, MTAs & DTAs, data standards &
data collection templates.
Need for improved use of tools to support
data sharing. 2c. Fund capacity strengthening in data management and analysis
(linked to 3a to enable equity).
Trust is key to data sharing and is hard to
establish within a PHE. 3a. Fund improved equitable, multi-disciplinary, multinational,
disease networks in advance of PHEs (linked to 2c. and 4a.) with
real time external data sharing requirements (aligned with 1.).
1b. Where policies cannot be altered, align grant/contract conditions
to require sharing of quality assured interim and final data in real time.
3b. Facilitate coordination between established research
networks.
Many of the data holders in PHEs are not
researchers funded by the GloPID-R funders.
Many stakeholders are involved in effective
data sharing.
4a. Collaborate within GloPID-R to align with and influence other
stakeholders: national funders, Ministries of Health, Ministries
of Science & Technology, commercial companies, publishers,
university hierarchy, policy makers (especially WHO) & humani-
tarian sector.
4b. Communicate the PH benefits of data sharing. Continue to
publish and advocate on the benefits.
Need for systems for data sharing which
researchers trust, without needing pre-es-
tablished trust through known collaborators
(linked to 3.).
5a. Support existing and expanded data sharing platforms for
priority pathogens with agreed governance mechanisms and
data security systems.
5b. Support an overarching unified governance structure for interna-
tional data sharing within which existing platforms can be embedded
and through which platforms for novel pathogens can be developed.
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