STAGES OF PROGRESSIVE SUPRANUCLEAR PALSY( PSP)
End Stage
The end stage is usually very difficult for care partners and loved ones. This stage may last several months or more but may also happen quickly based on a variety of factors, like if the person has any other chronic medical conditions or if they develop an infection such as a urinary tract infection( UTI). No matter what, the end stage can be a very vulnerable and intense time as the person requires hands-on and near-constant care.
Motor symptoms people may experience:
• Inability to walk
• Significant muscle stiffness Non-motor symptoms people may experience:
• Weight loss
• Urinary and bowel incontinence
• Very impaired or non-existent ability to communicate verbally due to loss of voice and inability to organize thoughts
Impact on daily living:
• Care is required for all daily activities Treatment, care or resources people can utilize:
• Hospice services to ease the transition and support quality of life through minimizing physical discomfort for the person with the disease and assisting the family in how to best monitor and provide care.
• A neurologist may still be helpful in finding medications to alleviate symptoms.
• Finalize any healthcare decisions, such as designating a power of attorney and deciding on advanced directives like a do not resuscitate( DNR) order or a living will.
How CurePSP Can Help
Medical treatments and supportive therapies should be tailored to your individual needs regardless of stage. We encourage you to talk to your healthcare team and tap into additional CurePSP resources, such as booklets, webinars and support groups, to learn more about MSA and how to best receive the care you need for your unique disease journey. We are here to answer any questions you may have and to help you feel as supported and informed as possible.