The A. J. Anderson Foundation
The A. J. Anderson Foundation was born out of a moment when hope seemed out of reach. In 2016, Brianne and Adam Anderson were devastated by their son Andrew’ s diagnosis of Tay-Sachs disease. Determined to fight for answers, the Andersons created the A. J. Anderson Foundation as a beacon of hope for families facing the unimaginable. Even after Andrew’ s passing in 2019, they remained steadfast in their mission, continuing to advance genetic research in his honor. The non-profit foundation is dedicated to supporting research aimed at discovering cures for pediatric rare diseases, including Tay-Sachs disease and related fatal disorders; promoting awareness of rare diseases; improving access to genomic medicine and diagnostics; and standing alongside affected families throughout every stage of the rare disease journey.
The Florida Institute for Pediatric Rare Diseases
The Florida Institute for Pediatric Rare Diseases( IPRD) was established at the Florida State University College of Medicine in 2024 and was formally codified in Florida Statute in 2025. The Institute’ s mission is to develop and integrate innovative technologies, research programs, and clinical initiatives that improve outcomes for children and families affected by pediatric rare diseases. The Institute’ s programs include a multidisciplinary precision pediatrics clinic, genomic research and diagnostic services, a graduate program in genetic counseling, and multiple rare disease research initiatives. Our clinicians, scientists and educators work collaboratively to advance innovative approaches to the prevention, diagnosis, treatment, and management of rare diseases through research, clinical care, community outreach, and education.
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