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The Conversation Project
The Conversation Project aims to help every person talk about their care wishes through end of life with free tools, guidance and other resources.
Hospice Foundation of America
The Hospice Foundation of America provides education and resources on hospice, grief and navigating loss.
National Alliance for Care at Home
The National Alliance for Care at Home is an alliance between the National Association for Home Care & Hospice and the National Hospice and Palliative Care Organization. The Alliance engages in education and advocacy to transform access to health care in the home.
Care Partner Resources
ARCH National Respite Network and Resource Center
ARCH promotes quality respite and crisis care programs across the country. Their National Respite Locator service helps care partners locate respite care services in their community.
Caregiver Action Network
The Caregiver Action Network works to improve the quality of life for millions of family caregivers across a spectrum of diseases.
Family Caregiver Alliance
The Family Caregiver Alliance provides services to family caregivers of adults with physical and cognitive impairments. Services include care planning, wellness programs, respite services and more.
National Alliance for Caregiving
The National Alliance for Caregiving uses policy and research to build health, wellness and financial security for family caregivers. Visit caregiving. org.
Community Resources
Your loved one’ s doctor or social worker can help connect you with Parkinson’ s-specific resources in your area:
+ Your local Area Agency on Aging or Aging and Disability Resource Center to locate resources in your community.
+ A Senior Living Broker provides free, personalized assistance for locating residential care facilities.
+ A geriatric care manager is a paid service providing individualized support where you need it. They could visit you at home, attend doctor’ s appointments with you, advocate for you at the hospital or rehab facility, tour senior living facilities with you and more. Find a geriatric care manager through the Aging Life Care Association.
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