Facing Parkinson's Together: A Guide for Care Partners | Page 36

The Pillars of Care Partnership

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Everyone comes to care partnership in different ways. Whether you’ re a spouse or adult child, a full-time or part-time care partner or close by or far away, these guiding principles can help you and your loved one navigate the complexities of Parkinson’ s— together.
Pillar 1: Talk Early, Talk Often
Communication is crucial in any relationship, especially when care partnership is involved. Approach conversations with kindness, empathy and love, for both yourself and your loved one.
Pillar 2: Ask for What You Need
Asking for help is a strength, not a weakness. It helps you to be a better care partner. Know what you need( or ask others to help you figure that out!) and how to ask for support.
Pillar 3: Commit to Your Own Self-Care
Self-care isn’ t selfish; it’ s self-preservation. You can’ t pour from an empty cup, and taking time to care for yourself is another way to care for your loved one. Even five minutes a day just for you makes a difference.
Pillar 4: Remember, You’ re Only Human
You, like every single one of us, are human. You are imperfect. You make mistakes. Be gentle and understanding with yourself. You’ re doing the best you can, and that’ s all any of us can do.
Pillar 5: Embrace Life Outside of Parkinson’ s
You are more than a care partner. Take the time to honor and appreciate all of who you are and cultivate the life you live beyond Parkinson’ s disease.
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