USER:
• Identity & Personality
• Our user is a young girl of approximately 7 years of age, appx. 4ft
• First language is Spanish and speaks English fluently.
• Focused and motivated
• Likes Frozen, the color purple and stickers
• Condition
• Limited joint movement in the arms and legs due to Arthrogryposis.
• Discharged, currently attends periodic therapy
• Range of motion
• Core
• Can bend all the way forward at the waist
• Cannot lift herself back up with core muscles.
• Swings head back and uses backward momentum to bring self up.
• Back
• Hyperextended torso
• Cannot round back out by leaning in the forward direction
• Shoulders
• Internally rotated
• Less than 45° active range of motion
• Full passive range of motion (180°)
• Not enough bicep strength to lift things that are too heavy
• Elbows
• No active elbow flexion
• 90° passive range of motion
• Wrists & Fingers
• Almost no range of motion in wrists (5°-10°)
• Fingers are fixed straight out of hand
• Limited movement in thumb
• Can only grasp things small enough to fit in the shape of her hand (nearly flat)
• Legs & Knees
• Does not walk
• Uses powered wheelchair
• Legs can hold some weight, but cannot straighten to stand
WHEELCHAIR FEATURES:
• Removable armrests
• User cannot remove armrests by herself
• Wheelchair back is molded to the specific shape of her back
• Seat height is higher than standard wheelchair
• Controlled by joystick in a “field goal” shape that is easier to grasp
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