CR3 News Magazine 2021 VOL 3: MAY - MEDICAL ISSUE: SURVIVING | страница 13

We ’ re calling on one million people to lead the way toward better health .
What is precision medicine ?
Precision medicine is health care that is based on you as an individual . It takes into account factors like where you live , what you do , and your family health history . The goal is to be able to tell people the best ways to stay healthy . If someone does get sick , precision medicine may help health care teams find the treatment that will work best .
What is the All of Us Research Program ?
The All of Us Research Program is a large research program . The goal is to help researchers understand more about why people get sick or stay healthy . People who join will give us information about their health , habits , and what it ’ s like where they live . By looking for patterns , researchers may learn more about what affects people ’ s health .
How do I join the All of Us Research Program ?
There are three ways to join :
• Visit the All of Us website JoinAllofUs . org .
• Download the All of Us app .
• If you get health care at one of our affiliated health care provider organizations , you can join there .
Because the All of Us Research Program is research , you will be asked to complete an informed consent process . This process tells more about what is involved , and the risks and benefits of joining .
What will you ask me to do ?
If you decide to join All of Us , we will ask you to share different kinds of information . We will ask you basic information like your name and where you live , questions about your health , family , home , and work . If you have an electronic health record , we may ask for access . We might also ask you to give samples , like blood or urine .
How long will the All of Us Research Program last ?
All of Us may last for at least 10 years . We hope you will stay involved over time . If you join , you can withdraw at any time for any reason without penalty .
Why should I join the All of Us Research Program ?
You will be contributing to research that may improve health for everyone . Here are some examples of what researchers might be able to discover :
• Better tests to see if people are sick or are at risk of getting sick .
• Better mobile apps to encourage healthy habits .
• Better medicine or information about how much of a medicine is right for each person .
What will you do to protect my privacy ?
We will take great care to protect your information . Here are a few of the steps we will take :
• Information we have about you will be stored on protected computers . We will limit and keep track of who sees the information .
• We will remove your name and other direct identifiers ( like your Social Security number ) from your information and replace them with a code .
• Researchers must promise not to try to find out who you are .
• We will tell you if there is a data breach .
• The All of Us Research Program has Certificates of Confidentiality from the U . S . government . This will help us fight legal demands ( such as a court order ) to give out information that could identify you .
Please visit JoinAllofUs . org for more information .
( 844 ) 842-2855 help @ joinallofus . org JoinAllofUs . org
Precision Medicine Initiative , PMI , All of Us , the All of Us logo , and “ The Future of Health Begins with You ” are service marks of the U . S . Department of Health and Human Services .