Companion Magazine for IBD Volume 1 | Page 46

FAMILY AND LOVED ONES LIVING WITH UC, WITHOUT IT; WATCHING A LOVED ONE BATTLE UC By Daniel Balyint @BALYINT The most important part of being diagnosed with inflammatory bowel disease is feeling the love and support of family and friends. Without that support system, most of us wouldn’t be here to tell our inspirational stories. Here, a boyfriend tells of his journey, watching two of the most important people in his life being affected by IBD and how it changed his view on life, love and health. I have lived with ulcerative colitis in my life since October 2012. Not once have I had a painful bowel movement, passed bloody stool, or struggle with insurmountable pain to the point that I became sick in this time. I have had to speed through traffic, counting down the miles to the next exit with a bathroom on the highway, anticipating sure disaster at any moment. I have been very accustomed to where the bathrooms are in the local grocery store, Wal-Mart, mall and restaurants all over town. I have become aware of packing toiletries and regularly buying toilet paper and moist wipes to help in any way. I have ulcerative colitis by extension. My girlfriend has battled through this awful disease for what feels like years, I can only imagine how she feels. Let me start off by saying that my own father almost lost his life to ulcerative colitis before I was born. He would have lost the battle if it weren’t for an emergency surgery to remove his colon and leave him with an ostomy for life. Strangely, however, I have never really known much about this terrible disease until I watched my girlfriend battle it with my own two eyes. To be honest, I didn’t even know what my dad suffered through, at all, until recently. I’ve found that UC is a strange beast. It will cause some people to go silent and just live with the cards they have been dealt, like my father. I have never really heard him talk 45