CONDITIONS- CDH
Congenital Diaphragmatic Hernia
Congenital diaphragmatic hernia( CDH) affects approximately one in 2,500 live births, and can be associated with other genetic syndromes or anomalies. It’ s relatively rare, but often devastating. Essentially an opening in the diaphragm, CDH allows abdominal organs to migrate into the chest cavity, severely constricting the development of the lungs— the condition’ s most troubling effect. It’ s often diagnosed in the second trimester if an ultrasound shows abdominal organs in the chest.
CDH SURVIVAL | 2012- 2016 *
Above national benchmarks in all categories
97 %
81 % CDH Survival Rate
81 %
42 %
80 % CDH survival with congenital heart disease
All CDH CDH- No ECMO CDH- ECMO
* Since program inception
Advancing the field
We were among the first to perform the nation’ s first fetoscopic endoluminal tracheal occlusion( FETO), a revolutionary CDH treatment that occludes the fetal trachea using a tiny balloon, causing the lungs to fill with fluid and expand. Though still in its trial phase, this procedure has so far demonstrated improved outcomes for severe left-sided CDH. We remain one of just five FDA- and IRB-approved FETO sites.
16 % Our ECMO utilization rate is low
102 Patients with CDH in the last six years
A research group led by Ahmed Marwan, MD, is currently studying contributing factors to the success of tracheal occlusion. This research will help scientists understand the mechanisms involved in lung and pulmonary vascular growth in patients with CDH, and may also contribute to applications promoting lung growth for other medical conditions.
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