Many people living with CBD consider professional care services, such as in-home care, adult day care, or long-term care, depending on their care needs and situation. These services can provide an additional layer of support, including companionship or hands-on help for the person with CBD as well as assistance and respite for the family.
It can also be valuable to connect with other people affected by the same diagnosis as you and your family, through support groups or a peer support network. It can feel validating and uplifting to hear others’ experiences and insights on how they have adapted to life with CBD. You can exchange helpful tips on ways to cope physically and psychologically with the diagnosis. There are a handful of support groups specifically for CBD and many more for atypical parkinsonism( which can include progressive supranuclear palsy and multiple system atrophy) in the United States and other countries. Visit www. psp. org / ineedsupport / supportgroups for a list of regional and virtual support groups facilitated by or in collaboration with CurePSP. Additionally, CurePSP offers educational symposiums and webinars where you can learn about CBD and connect to the community.
We recognize that a diagnosis of CBD can bring up many emotions, changes and
considerations. No matter how you find support, please remember that you do not have to navigate the CBD journey alone.
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The mission of CurePSP is to raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.
Please contact CurePSP for additional information and resources: www. curepsp. org info @ curepsp. org 1-800-457-4777