MANAGING CARE( continued)
Conclusion
Having the discussion about driving safety is difficult. Driving cessation can be viewed as a sign that one is sick, with the need for major lifestyle changes. Sometimes the person has insight into driving difficulties and can participate in helping make the decision about when to stop driving. But often it is more challenging. Driving alternatives— and in some cases, a move— can help, but, as a non-driver, the spontaneity of going out for an ice cream on a hot July evening may not be possible. Hopefully, with thoughtful discussion, the person with PSP will adjust and the need for more authoritarian measures will not be needed( for example: reporting to the DMV, or removing or disabling the car).
Despite resistance to ending driving, some individuals are actually relieved to stop driving. They may have been in some very anxiety-provoking situations on the road, and they may not have shared this information with family.
In any case, work with the person with PSP to define themselves as much more than a driver— rather, as a person with many strengths. Professional counselors can provide additional help for those experiencing significant mood changes as a result of driving cessation. The family can highlight for the affected individual other times in their life when they have adjusted to change with strength and resilience. Hopefully the individual can draw on these past strengths and family support to manage the transition to no longer driving.
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Understanding Palliative and Hospice Care
Diane Breslow, MSW, LCSW
CurePSP is committed to providing its constituents— patients, families, caregivers, and healthcare providers— with up-to-date educational information about topics relevant to living with PSP, CBD, and MSA.
The terms palliative care, hospice care, end-of-life care, comfort care, and supportive care are widely misunderstood and often used interchangeably. They also may conjure fear, stigma, and myth. One of the most common misconceptions is that palliative care and hospice care mean“ giving up.”
This article will help you understand the care options defined as palliative care and hospice care. In addition, you will find a list of available resources to assist you in making informed decisions about enlisting palliative or hospice services.
Comfort care is the umbrella term for patient care that is focused on symptom control, pain relief, and quality of life. Comfort care includes supportive care to family members by explaining the care plan, responding to questions and concerns, and providing emotional comfort.