What do people learn?
Information about PSP and related neurodegenerative brain diseases:
• What are typical symptoms?
• What constitutes a thorough evaluation and diagnosis?
• How do these diseases vary from person to person?
• What can be expected as the disease progresses?
• What treatment options and clinical trials exist?
Information about available resources in the community:
• Where do I go for help?
• What disability benefits are available and how do I apply?
• What options are available for respite care?
• What if I have to admit my loved one to a nursing home?
Information about identifying methods of coping:
• What if there is no help at times?
• What if there is family conflict, or lack of understanding on the part of well-meaning relatives and friends?
• How do family members deal with the possibility of needing to place a loved one into a nursing home?
Feelings of anger, fear, guilt, frustration, and grief interfere with decision-making. Talking about feelings with others helps to sort things out. Through sharing together, people help each other appreciate the range of responses to situations, their growing knowledge of the disease, and their ability to make use of practical coping strategies.
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How do I find a CurePSP support group?
Please go to our website www. psp. org / ineedsupport / supportgroups / where you will find listings. If you don’ t have access to the Internet, please call Joanna Teters at 347-294-2871.