Celebrating 26 years of compassionate and professional service
The stronger the wind, the tougher the trees
NON-PROFIT
POSTAGE
PAID
PERMIT #67
Aurora, CO 80017
the sturge-weber foundation
P.O. Box 418
Mt Freedom, NJ 07970-0418
USA
Change Service Requested
RO
O TS
TO A CU
RE
something to think about
Port-Wine Birthmarks (PWB) on the skin are
developmental abnormalities in blood vessel
formation (capillary malformations) that
are more extensive and darker than the pink
capillary birthmarks often seen at the nape of a
baby’s neck.
Sturge-Weber syndrome (SWS) is a rare
congenital condition usually consisting of a
facial port wine birthmark, glaucoma, and
seizures, (although not all of these symptoms
may be exhibited).
Klippel-Trenaunay syndrome, or KT, occurs as
the result of a congenital vascular malformation
in an extremity, such as an arm, leg, or foot.
The SWF is a clearinghouse of information for
Port Wine Birthmarks, Sturge-Weber syndrome,
and Klippel-Trenaunay syndrome.
The swf Policy Statement:
In implementing the purpose of The SturgeWeber foundation to improve the quality of life
for individuals with SWS and their families,
The Foundation will act as clearinghouse of
information, provide emotional support, and
facilitate research on PWB, SWS and KT.
As a clearinghouse of information, The
Foundation will seek information regarding
management and treatment techniques
and suggestions concerning education and
emotional support and will facilitate the
dissemination of appropriate information.
If, in facilitating research on PWB, SWS and
KT. The Foundation provides financial or other
support to a particular research project, The
Foundation will base its decision upon need,
The Foundation’s financial resources, and
medical advice.
16
Your emails are the first positive thing we have gotten in a
couple of weeks. We are very
happy to have found the SWF.
Thank you so much.
- Marilou, Canada
You have all been an amazing
support through the last few
years. I have an amazing pediatric neurologist for my son
thanks to a referral from you.
- Tomika, California
This issue is brought to you in
part through the generous
contribution of The
Allergan Foundation.
Save th
e Date:
• Apr
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Benefi
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• Jun
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PLEA
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YOUR
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Celebrating 26 Years of Compassionate and Professional Service