Brain Aneurysm Foundation Support Group Manual Support-Group-Manual_17 | Page 13

Subarachnoid Hemorrhage (SAH) • Definition • Aneurysmal, spontaneous, traumatic SAH • Signs and symptoms • Urgency of treatment • Mortality/morbidity • Sequelae: vasospasm, re-bleed, seizure, hydrocephalus, headache syndromes, cognitive impairments Recovery: Symptoms and Management • Memory/attention • Fatigue • Motor/sensory/perceptual impairments • Depression (patients and caregivers) • Post-SAH medications: anti-seizure meds, antiplatelet therapies — rationale and side effects/management • Post-SAH headaches • Time frame of recovery Recovery/Rehabilitation • Rehabilitation therapies • Length of rehabilitation, rehabilitation activities, adaptive equipment • C  ommunity resources for adaptive equipment • Selection of rehabilitation providers • Vocational rehabilitation • Returning to work; advocating for work alternatives, etc. Finances/Legal We recommend inviting a social worker and/or an estate/employment law professional to present this discussion. • Family and Medical Leave Act (FMLA) and its role in employment protection • Accessing short- or long-term disability (STD/LTD) through an employer • Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) • Inpatient/outpatient coverages and policies • Respite care, community supports • Long Term Care (LTC) insurance • Advance directives/Durable Power of Attorney for Health Care (DPOA-HC) and their importance Psychosocial Aspects of Recovery You may want to consider breakout sessions for caregivers and patients to meet and support each other separately. • Depression, anxiety: symptoms and treatment options (counseling, peer support, medication) • Caregiver support; how to arrange for caregiving • Learning to ask for and receive help • Resuming social roles: communication, compensatory techniques in social situations 12