Boxmoor Direct January 2022 - Page 8

Sir Mike Penning MP

Update from Parliament

Lexi ’ s parents , Alex and David , have joined up with the charity FOP Friends to campaign for more funding for research . FOP Friends launched an e-petition to Parliament and , with Alex ’ s social media skills , secured the necessary 100,000 signatures in a record time of eight days .
I spoke in the debate , and we ’ ve secured a meeting with the Minister and her team in the new year .
The second campaign was also an e-petition , this time on ‘ Reggie ’ s Law ’ calling for regulation of all websites where animals are sold . We presented a petition to 10 Downing Street and I spoke in a debate .
Another busy month and two campaigns I have been involved in have come to Parliament .
Also , having failed to secure a question at Prime Minister ’ s Questions via the weekly ballot for ten weeks in a row , I managed to ‘ catch the Speaker ’ s eye ’ and ask the PM a question last month . There are 650 MPs and the PM usually only answers about 20 questions in each PMQs per week . I asked the PM to back a new hospital for west Hertfordshire and in reply he offered me a meeting with the Secretary of State for Health and Social Care – which I am following up .
The first campaign to come to Parliament this month was in support of my young 10-month-old constituent , Lexi , who has been diagnosed with the ultra-rare genetic condition , Fibrodysplasia Ossificans Progressiva ( FOP ).
FOP is caused by a random single gene mutation which makes soft tissue in the body to gradually turn into bone , slowly restricting mobility and eventually locking the body into a fixed , contorted position . There is currently no treatment , prevention or cure .
There are just 14 children in the UK with FOP and
Justice for Reggie was founded by Richard Ackers who bought a 12-week-old puppy , Reggie , from a reputable website only for Reggie to sadly die just 4 days later after being very ill .
The campaign wants all websites to be required to verify the identity of all sellers , and , for puppies and kittens , for photos with their parents to be posted with all listings .
Let ’ s bring an end to the misery caused by puppy farming .
https :// fopfriends . com / https :// www . justiceforreggie . co . uk /
Web : www . penning4hemel . com Email : mike . penning . mp @ parliament . uk
Telephone : 01442 251126
8 < Boxmoor Direct < January 2022 <