Siblings Trinity Rose, Maria and Josh,
left. Josh with his mother, Robin,
above during happy and trying times.
participates in Chung Nu and sings like
Syndrome (LGS), a rare type of epi-
they belong to You. So I’m going to let
an angel.”
lepsy accounting for 2 to 5 percent of
go and trust whatever You have planned.
childhood epilepsies. It causes about
I might not like it, but I’m going to follow.’
One year later, Robin received a
similar call.
“My husband and I were sitting at
“We’re very grateful,” she continues.
lasting just a few seconds. Intellectual
“God could have chosen anyone in the
lunch when DCF called. They hadn’t
development is usually impaired with
world to be Joshua’s parents, and He
known the woman was pregnant. I
the disease. No cause has been identi-
chose us. Some days, we have very seri-
blurted out ‘She had another baby’ and
fied, medications don’t usually help and
ous challenges, but there are lessons
my husband just said ‘I hope it’s a boy.’
no cure is available. He will need lifelong
here and so many more blessings. Your
We didn’t know the gender until we got
treatment.
faith helps you see those blessings.”
to the hospital later that day to get him.”
Everything went smoothly until Josh
“As a parent dealing with a child that
About a year ago, Josh — who is
has exceptional needs, you have to look
now 8 — was the first child to have what
turned two and they realized he had
at it in a different perspective,” Robin
doctors and the families hoped would
what Robin calls “exceptional needs.”
says. “You might think, ‘God, I can’t do
be a revolutionary surgery that removed
this.’ But I say, ‘They don’t belong to me,
a section of his brain. However, the
Josh suffers from Lennox-Gastaut
20
50 seizures a day in Josh, each usually
November 2016 - March 2017