Angelman Today September / October edition 2013 | Page 5
ASSERT began in 1991 – although launched 1st January 1992 – as a support group run by families and for the benefit of families of people with Angelman Syndrome. ASSERT began with 15 families and these pioneers have subsequently been joined by more and more from within the UK and from places as far away as Australia and New Zealand and America as the diagnosis has become more widespread over the years. Dr Harry Angelman, from whom the condition was given its recognised name, was a paediatrician practising in the small Northern town of Warrington in the North of England near Manchester. In the early nineties Angelman Syndrome (originally known \?8?&\ H \ ]?[? ??Yx?&JH ?\? ?[H] K\?X???\?Y??][??[ ?Y??\??XY???Y[? H ?^ Y\??H ?[??[X[? H \\?H ??H ?\?\??[ H [?X????Y?Y [?[] ?\? Z?[? \?H ??\?\??[X[\?Y?Z[?[? H]H NN 8?&\?\?H??][? ?? ? Y Z[????X\?Y\???]?\? H?\??T??T? \?[? ??[YH ??]\?[? ?] \ H[??[X[??[? ??YH?\ ?Y X?][??\?X\?? ?\??X?]\?H ^H ?[?Y[?x?)?HY??\?[??[?? ?\ ? [? HT?????[??\?] H [YK?H??[?\???T??T? ?X?\?[?[\??[[? ??]\? ?][Z[?H[??\[??X\??[??][YH??Y^K ?\?H]\?Z[?Y ]?\? \?[? ? ??[ ?X?Z]?H H[ [?[???X][? ^HY?]?Y] H [YH ^H ?X?Z]?Y Z\?XY???\? ?? ]???\? \?[? ? ??[?Y[[?H [?\?? ^H ?\?Y ??K??^KT??T?\?????]X\?]\? ?[H]] X[ ?\ ???\?] H?\?] H ?[??HH ?X[ X[H?YX?]Y ?? [?\?H ?\?Y\?\????[[?Y?\?Y[H?H?? ??\??[?[ ?[??[Z[Y\?[Z?K?\? YX\?T??T?\?[??? ?Y ?] H?]? H??YY??[Y?[?X??\?Y[?X[??\?\? [?\? H?\?H? ??[?^]?T?Z] ?Y? [??H][ KY\??\[?\?H\ ??X? ?[Z[ H? ?\?H???X?H ? ?Y?\??\?\? ? H?[?X????\?X? ?\ ?[??H X?K?H?\???[?X? ?\?H Y?H ?X??\??[? ?H\?H???[?????\? ??\?\??[?X???Z[??]?[?[?H ?X??\??[ ???T??T??Y?[??X?]\?H \?[? ??YYYH ??]]?HY\??Y?K ?X?X?[ ?\ ?[? ?X[\?X?Y ?X?HX??] HXY???\?[?Y?H?^[? H ^H?YYY ?]?H ??YHYXH? ?\?H HX?[8?'[??[X[??[? ??Yx?'H ?\???[?? ? Z?H [H[? ?] H??\??^H ??[?HZ?K??] H [YH \?H ?\?[??\???\?[ HT???
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