Angelman Today September / October edition 2013 | Page 34

Angel Lina’s Testimonial
Lina’s Mom shares with us the success on LGIT and GFCF diet Lina and her family are from Germany this article features both languages. Our angel Lina (deletion class 2) will soon turn 4. For her first 3 years of life, she was able to develop well without epilepsy. Right around her third birthday, epilepsy started with first febrile seizures. We started the LGIT diet in November of 2012 as well as treatment with Frisium due to many myoclonic seizures and developmental stagnation. In addition, in April we went gluten free and reduced casein intakes significantly. Ever since, Lina is doing well and of her myoclonic seizures not much is noticeable. She has also had great developmental advancements; she walks more stable, eats almost by herself with the spoon, rides her bike, and is potty trained. She is healthier and appears to be more awake and alert. In addition to her special diet, Lina also receives the following supplements: Speak (vitamin E, fish oil), Aloe Vera, Manuka honey, magnesium, Bioastin and curcuma; all anti inflammatory substances. The EEG taken after 9 months was so surprising to our neurologist that he could not believe it. All epileptic potentials that had existed since Lina’s first year were gone. Also, the typical Angelman waves have adapted for the first time in her life; this also corresponds to her improved behavior. Our neurologist was very surprised and has never seen anything like it. Dr. Thibert indicated that this effect of LGIT happens to many Angels in combination with Clobazam. For us the diet is a wonderful way to significantly improve the quality of life for our daughter with little effort and to avoid the need of additional medication. We often travel as a family; even then, the diet is possible without problems. We suggest each family give it a try. -Family Dietrich from Germany

Unser Angel Lina (del klasse 2) wird nun bald 4 Jahre alt. 3 Jahre lan