Angelman Today September / October edition 2013 | Page 32

Going Back to School and Maintaining LGIT
By Sybille Kraft Bellamy

Going back to school for LGIT students can
be easy to prepare. Personally, I consider Max as being allergic to sugar! The same way he wears a red wristband in the Hospital Warning of Dextrose/glucose allergies, his teacher, aides and therapists are informed about his ketogenic diet. It is one of the main items on his IEP. We have a controlled protocol with the staff that lists the food allowed and the amount authorized. I prepare Max’s lunch daily and if he did not eat the way he should for his breakfast I write a note in his communication book alerting the staff. They will try to give him an early snack. He eats his lunch in the school cafeteria. The smell of food will sometimes bother him so Max will eat a cold meal for lunch most of the yea