Angelman Today September / October edition 2013 | Page 17

Angels in Action

E

ddyto was born a healthy baby at 37 weeks. He has a sister aged 4 and lives in Guatemala, Latin America. Eddyto was diagnosed with Angelman Syndrome, del +, Class II, at 11 months of age.

But today, I want to tell you the story of how Eddyto is evolving in his gross motor skills. He started crawling military style before his first birthday and kept that technique for 8 months. We thought he would never crawl four point but when we went to Austria to visit my mother’s family we spent a lot of time in the garden and Eddyto realized that dragging his body on the grass did not work so he changed his approach and voila, he started to four point crawl!

and forth between the sofa and coffee table and balances his body preparing himself for independent standing. Every once in a while he will let go for a second and test his balance realizing that he still needs to hold on to something for now. We received a wonderful Rifton walker by another angel family and had started to use it, but we decided to hold off some time till Eddyto is ready to walk. We work hard on Eddyto’s balance and do 5 to 6 hours of therapy daily. Feel free to check out Eddyto’s video at http://www.youtube.com/watch?v= 4YFqDIDLq20 Last but not least I would like you to remember - Never put any limitations on your Angel.

We have been working hard ever since with nutritional therapy, supplements and the NACD program. Eddyto has come a long way and we are doing everything we can to support him to achieve his maximum potential in health and development. In addition to having Angelman Syndrome, Eddyto took another hard blow at 7 months of age. His third set of influenza, DTP and hepatitis B vaccines was too much for his body to handle and he lost previously acquired skills, decreased eye contact, stopped babbling, had a sudden onset of hypotonia, which had not previously existed and drifted off into his own world. We quickly implemented nutritional thera ??????????????????????????????????????????????????????????????????????????????????????????????1?????????????9??????????????]??????????????????????????????????????????????????????9
??????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????%??????????????????????????????????????????????????????????????????????????????????Q?????????????????????????????????????????????????????????9?????????????????????????????????????????????????????????????????????????????????????????????????????????????!??????????????????????????((