Angelman Today November / December edition 2013 | Page 4
What does the S.A.F. Association propose:
- Enchance the expertise of parents in organizing and
facilitating the dissemination of information and sharing
experiences. This is why a website magazine has been
created and managed ( www.syndromeangelman-france.org
) This site is interactive , collaborative, and has a regular
and consistent link with families spread over the five
continents.
- Be a resource center for families having someone with this
disability in society.
- Deepen reflection on their own disability of mental
handicap and thus contribute to others a view on this
difference.
- Publicize the Angelman syndrome.
- Encourage and help the research by informing and
sensibilizing medical, paramedical, social and medicosocial groups on traditional and innovative educational
methods adapted to the Angelman syndrome.
- Cooperate by exchanges with other regional and national
associations, who have the same values and objectives.
Two SAF actions:
- Inventory of individuals with Angelman syndrome.
- Find the results of our investigation on the website:
http://www. syndromeangelman-france.org/wpcontent/uploads/Survey-Angelman-Adult-2013-France.pdf
Syndrome Angelman France
www.syndromeangelman-france.org
www.facebook.com/Syndrome.Angelman.France
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Syndrome Angelman France is an association created
nationally for those families and friends of people who have
the care of SAF. The administration of SAF is composed of
families as well as professionals from the medical,
paramedical and medico-social world. The functioning of
SAF is totally assured by voluntary workers.
A BOOK TO READ:
“Angelman Syndrome - A look on
a rare neurogenetic disease”.
This book is published by Editions
H. prefaced by Professor DAN and
written by Anne Castle. Anne is the
mother of a young adult Angelman
and Vice-president of the
Syndrome Angelman France
association.
Collection Sciences et Société –
Editions L’Harmattan
BUY TODAY WITH THIS LINK:
A lire : Le SA, Regard sur une
maladie neurogénétique rare, un
livre publié aux éditions H, préfacé
par le Pr DAN et écrit par Anne
Château, maman d’un jeune adulte
A et Vice-présidente de
l’association SAF