Angelman Today November / December edition 2013 | Page 32

Greetings Angleman
community and all
the readers of
“Angelman Today”. I
would like to thank
Liz Sordia for
stepping out and
showing leadership
by creating this
periodical to bring us
all closer and help us
find ways to meet
our challenges that
will maximize our
Angles’ potential and
the opportunity to
share with you the
experience of the
moment I and my
wife learned that Max
had Angelman
syndrome.

I am a Dad of a 12yr old Angel
named Maxent. Max has two
brothers, Charle, age thirteen and
Tristan, age eight.
It is a day I am sure all parents and
families remember like yesterday,
a mark of a journey that is
remarkable.
Maxent was born November 5,
2001. He was due the second week
of December but he decided he did
not want to wait that long. Our
family was in the midst of quite a
bit of chaos as the events of
September 11 had just disrupted
our lives. I work in the financial
markets and my office was 1 block
from the World Trade Center. I
was displaced from my job as a
result of the horrible events of that
day.
Our family is very blessed that
this is all that occurred to us and
our prayers are with the many
friends and associates and victims
we lost. May peace always be with
them and their loved ones.

My two partners and I were lucky
enough to find an opportunity but
it required us to relocate to Irvine
California.
In the meantime, my wife
Sybille and 16 month old son,
Charle moved to My Mother’s
house in Delaware. We figured I
would get a feel if the company
was a good fit for the family and if
it was, we would move everyone
out after Sybille gave birth in
December.
Two weeks later Max made his
big debut! As a result of his
impatience (6 weeks premature)
Max needed additional care and
was rushed from the birthing room
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