Angelman Today January / February edition 2014 | Page 34

Why don't more doctors suggest dietary therapy as a first and safe option for seizure treatment? "My guess is lack of awareness and maybe they do not want to change what they have always done, which is prescribe medication, the evidence is there to support dietary therapy. We are looking into preparing a package of material to help educate other dietitians". Another person who is willing to help is Angel Mamma Sybille Bellamy. She has created a facebook page dedicated to what she is calling the Angelman Syndrome Diet. She shares the recipes she uses for her son Max who has been on the diet for years. She also shares important dietary info and articles. For an example, Sybille has listed a meal plan of 1 day for Max on LGIT. Here is the publication available on PubMed. Dr. Thibert is hopeful that this information will get out into our community and more people will use the Low Glycemic Index Treatment to reduce seizures. 80-90% reduction is astonishing! In my humble opinion, if your child with Angelman Syndrome or any seizure condition for that matter is still having seizures, you should try this diet!! It breaks my heart every time I hear of someone in the hospital with suffering with seizures. We see the same thing every time... Doctor's don't know the cause, they check levels of medication in the body or do an EEG and in the end they just prescribe more medicine. Been there, done that too many times with Nathan! It wasn't until I took his diet into my own hands, armed with the right information an excellent team of physicians that understand the importance of diet and made it happen!! You can too! Dr. Thibert is willing to help each and every one of you! Contact: Dr. Thibert Office Phone: [phone] Pediatric Epilepsy Program, 175 Cambridge Street, Suite 340 Boston, MA 02114-2796 Morning breakfast: 2 tbs steel cut oatmeal cook in coconut cream. 1 table spoon of manna coconut 1tbs of coconut oil 1tbs of mix seeds-hemp, chia, sesame, flax seeds and 1 tbs of walnut butter. Drink is herbal tea with coconut oil. At school Max drinks herbal tea with MCT and a lot of water with lemon juice. Lunch: 3 tbs of sheep yogurt, 2 tbs of grated apple, 1 tsp grated carrot, 1/2 avocado, 1tbs almond butter, 1tsp of MCT. Nurse give him MCT (medium chain triglyceridearound) 2 pm 5ml at school. Afternoon snack: home made almond milk, 1tsp coconut flour, cinnamon and 4 strawberries. Dinner: Vegetable soup- kale, spinach, carrots, onions, with one egg, grass fed butter, goat cheese. He likes to drink before bed- coconut milk with 1/2 tsp of coconut flour. Max drinks a lot of water. I hope you find this info helpful on your journey of helping your loved ones achieve the healthiest lives possible. We may not yet have a cure for AS, but we have these therapeutic diets to help us against life threatening seizures. ASK DR. THIBERT Does your Angel have seizures? Are you interested in starting the LGIT, but have some questions? Here is your chance to get those questions answered. In the next edition of Angelman Today, Dr. Thibert will answer your questions about the Low Glycemic Index Treatment. There are a few ways you can participate; Email your question to [email protected] Write on our Facebook page or Tag @angelmantoday on Twitter #AskdrT