Angelman Today January / February edition 2014 | Page 17

Welcome our new Board members Please join the Angelman Syndrome Foundation in welcoming two fathers to individuals with AS to the Board of Directors Tim Bousum Justin Grill Justin Grill is a board-certified emergency medicine physician and covers three emergency rooms for Emergency Health Partners along Michigan’s Lake Michigan shore, and was recently appointed as Assistant Director of Medical Education for Mercy Health. A public speaker and expert regarding emergency issues with individuals with Angelman syndrome, Justin and his wife, Carrie, are parents to four-year-old Noah, who is diagnosed with Angelman syndrome, and his siblings, two-year-old Daniel and 10-monthold Hannah. The Grill family has been involved with the ASF since Noah’s diagnosis in 2011, and has held fundraisers in their hometown of Spring Lake, Mich. Says Justin, “As a parent and a physician, I have a keen interest in Angelman syndrome research and in supporting innovative projects that bring treatments to individuals with Angelman syndrome. Education is also a major component of my medical practice so I also have an interest in how we can best educate parents and caregivers of individuals with Angelman syndrome and the general community, and I hope to use my skills in these areas to further support the Angelman syndrome community.” www.Angelman.org (800) 432-6435 Tim Bousum works in specialty sales with AstraZeneca Pharmaceuticals. He and his wife, Maiya Dos, an architect with TriPyramid Structures, have two children: six-year-old Cooper, and three-year-old Bode, who was diagnosed with Angelman syndrome in 2011. Residents of Ipswich, Mass., the Bousum family are active supporters of the ASF, and have raised more than $45,000 during the last three years for the ASF National Walk site in Boston. Says Tim, “By joining the Board of Directors, I hope to further raise awareness of Angelman syndrome in our communities and contribute to the vision of improving the lives of our loved ones with Angelman syndrome. I have seen first hand what this organization can do—from opening Angelman syndrome clinics at major teaching hospitals, to the Biennial Conferences that balance research, medical care, science and day-to-day living strategies at the family level, to funding groundbreaking research, the ASF i ›XZ