Angelman Today January / February edition 2014 | Page 14

Here’s to a fantastic new year! New resources at your fingertips The Angelman Syndrome Foundation offers valuable resources to families and caretakers of individuals with Angelman syndrome. Check out what’s new! ASF Educational Webinar Series The ASF Educational Webinar Series provides you with the most up-to-date information about living with Angelman syndrome. The ASF invites experts to speak about topics that help families and caretakers improve quality of life for individuals with AS, addressing topics such as research updates, clinical developments, tips for everyday living and managing symptoms, and many more. The webinars also allow you to ask questions and interact with these experts, maximizing the value of your participation. The webinars are intended to be a key source of information and support, and we hope that you find this resource valuable in your journey with AS. To learn more and see the list of upcoming speakers, please click here. Informational Series on Angelman Syndrome Behaviors The latest update to the Informational Series on Angelman Syndrome Behaviors, Neurologic and Medical Influences on Aggressive Behavior in Individuals with AS, addresses the complex relationship between aggressive behavior and management of the many medical issues that are commonly experienced by individuals with AS. Developed by Ron Thibert, D.O., a renowned expert on AS and a clinician at the Comprehensive Angelman Syndrome Clinic in Boston, this latest update explores how seizures, sleep, gastrointestinal and orthopedic health, and pain management affect aggression, and how these medical issues can increase or decrease aggressive behavior. Click here to access this update. Rockville Centre St. Patrick’s Day Parade The ASF is incredibly honored to be chosen as the national charity to benefit for the 2014 Rockville Centre St. Patrick’s Day Parade! The Parade which takes place in Rockville Centre, New York on Long Island, raises funds at various events throughout the year leading up to St. Patrick’s Day, which are donated to three charities. The more who participate in these events, the more money will come back to the Angelman syndrome community! Mark your calendars for: • anuary 24, Our Taste Of Rockville Centre, St. Agnes Parish Center: a food and wine tasting event J •  arch 16, CJ Coffee Shop Fundraiser, CJ’s Coffee Shop: you’ll be hard-pressed to find a better M breakfast on Long Island! •  arch 21, Grand Marshall Reception, RVC Links: a formal reception honoring Grand Marshall M Sean O’Rourke •  arch 22, PARADE DAY! Commemorative Mass at St. Agnes Cathedral followed by the Parade M down Maple Avenue www.Angelman.org [phone] Int’l [phone] [email protected]