Alabama Genomic Health Initiative Annual Report Annual Report-AGHI FINAL

The public launch of the AGHI represented a collaborative effort among UAB Health System Marketing Communications, UAB University Relations, UAB Department of Genetics, UAB School of Medicine Communications, AGHI Leadership, and HudsonAlpha Communications and Marketing. Through combined tactical communications efforts, the media relations potential reach was over 3.5 million. 06/15 First whole genome sequence participant enrolled at North Alabama Children’s Specialists, part of the Children’s of Alabama network 03/09 AGHI Press Conference 10/08 1st AGHI planning retreat* OCTOBER 2016 JANUARY 2017 01/28 2nd AGHI planning retreat* MARCH 2017 03/08 www.aghi.org website launched in preparation for press conference 03/09 UAB Institutional Review Board grants approval for AGHI Administrative Protocol *Planning retreats were essential steps toward executing a comprehensive strategy for the AGHI and to clarify procedures moving forward. 6 Alabama Genomic Health Initiative Annual Report 05/18 Pilot recruitment phase begins at The Kirklin Clinic of UAB Hospital in Birmingham 05/02 UAB Institutional Review Board grants approval for AGHI Recruitment and Engagement Protocol 03/01 @uabprecisionmedicine Twitter account goes live 07/25 First whole genome sequence participants enrolled at Children’s of Alabama MAY 2017 05/03 AGHI Town Hall led by Sara Knight, PhD, at UAB Health Disparities Research Symposium, Birmingham 07/11 AGHI presented at UAB Cancer Center Community Dissemination Institute JUNE 2017 06/01 100 participants enrolled** 05/08 AGHI presented at UAB-HudsonAlpha Center for Genomic Medicine Symposium in Huntsville **At this point, AGHI recruitment implemented a quick pause to evaluate efforts and materials, and to make improvements prior to launching a full-scale public recruitment effort. 09/01 First participant results received. Genetic counselors begin to return results to participants and providers*** JULY 2017 AUGUST 2017 07/28 250 participants enrolled 06/22 Enrollment opens at Medical Towers 08/14 500 participants enrolled 09/14 First whole genome sequence participants enrolled at The Kirklin Clinic SEPTEMBER 2017 09/04 750 participants enrolled UAB awarded the grant from the state of Alabama OCTOBER 2017 09/29 1,000 participants enrolled 07/11 Open/Public enrollment begins ***Providers are notified only if participants consented to have results shared with their chosen health care provider. www.aghi.org 7

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