CurePSP’ s Commitment to Our Community
In the wake of recent concerning federal policy changes and funding cuts, at CurePSP, we pledge our continued commitment to our mission to raise awareness, build community, improve care and find a cure for progressive supranuclear palsy( PSP), corticobasal degeneration( CBD) and multiple system atrophy( MSA).
Largely thanks to research funding from the National Institutes of Health( NIH), we have witnessed major breakthroughs in understanding, preventing and treating neurodegenerative diseases. Recent examples of NIH’ s vital role include the National Parkinson’ s Project advisory council, which will be housed under the NIH and will coordinate federal efforts around the Parkinsonian diseases, including PSP, CBD and MSA.
Additionally, the PSP Platform Trial— enabled by a five-year, up to $ 75.4 million grant from the National Institute on Aging and led by the University of California, San Francisco— aims to establish partnerships with biotechnology and pharmaceutical companies to evaluate three potential therapies for PSP across 50 medical centers.
In the United States, people with PSP, CBD and MSA, and their care partners, rely on federal agencies such as the Centers for Medicare and Medicaid Services, the Food and Drug Administration and the Social Security Administration to access essential medical care, adaptive equipment, prescription drugs and support services.
Drastic reductions in infrastructure of these federal institutions, whether through cuts to public funding or layoffs of scientists, clinicians, healthcare professionals and other vital experts, undermine the progress previously made. These actions jeopardize the advancement of clinical trials, biomedical research, timely diagnosis and high-quality care for the PSP, CBD and MSA communities for years to come.