Poster abstracts
help, therefore, to try and minimize the gaps that exist when
managing them.
Methods: This study was based on a custom questionnaire which
included 14 questions for each patient. The responses were
gathered from 20 patients (and it is still ongoing) diagnosed in
our Department of Dermatology and Venereology Timisoara, each
in different stages of disease. All the answers are confidential
and anonymous. An informed consent was signed prior to any
taken actions. To achieve meaningful results, we asked patients
to be honest and to present the situation in a real way. The most
important question on the questionnaire was “Which of the three
options represents the PASI score you would like to achieve?
50/75/90?”. In addition to this question, we provided the patients
with three pictures each of them showing a different PASI score,
so they can choose the proper answer much easier.
Results: 80% of the patients chose PASI 90, 15% chose PASI 75
and only 5% chose PASI 50.
In addition to this, the gender distribution showed us that 100%
of the female patients chose PASI 90, proving how important
appearance is for them, and how much of a weight it is for them
to have disease that is in the limelight. On the other hand, the
male patients were divided into three groups. 69% said that the
efficiency of the therapy is very good, choosing PASI 90. Only
23% of male patients consider PASI 75 satisfying and the last 8%
represents PASI 50.
Conclusions: Psoriasis is a chronic inflammatory disease, which
is intensively studied at the cellular and molecular level. What is
considered a good response to a treatment is sometimes different
from the perception of a patient vs. a physician, therefore we must
always keep a balance between aiming high (and maybe risking to
over-treat some patients) and meeting the patient’s expectations.
P130
THE IMPACT OF PSORIASIS AND PSORIATIC
ARTHRITIS ON QUALITY OF LIFE AND CAREER IN
SCANDINAVIA
Albert Duvetorp 1 , Mikkel Østergaard 2 , Lone Skov 3 , Oliver Seifert 4 ,
Kåre Steinar Tveit 5 , Kjersti Danielsen 6 , Lars Iversen 7
Skånes Universitetssjukhus, Malmö, Sweden; Linköping University, Lin-
köping, Sweden, 2 Copenhagen Center for Arthritis Research, Center for
Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, University
of Copenhagen Copenhagen, 3 Herlev and Gentofte Hospital, University of
Copenhagen, Denmark, 4 Linköping University, Linköping, Sweden; Ryhov
Hospital, Jönköping, Sweden, 5 Haukeland University Hospital, Bergen,
6
UiT The Arctic University of Norway; University Hospital of North Nor-
way, Tromsø, Norway, 7 Aarhus University Hospital, Aarhus, Denmark
1
Introduction: Patients’ perspectives on the effects of psoriasis
(PsO) and psoriatic arthritis (PsA) on health-related quality of
life (HRQoL) are important in establishing better approaches to
their care and treatment.
Objectives: To better understand the impact of PsO and PsA on
daily life, education and work in Scandinavian countries.
Methods: The NORdic PAtient survey of PsOriasis and Psoriatic
arthritis (NORPAPP) was an on-line survey carried out in Nov/
Dec 2015 using YouGov panels in Sweden, Denmark, and Norway.
Adults (18–74 years old), with physician-diagnosed PsO or PsA
(n = 1221), answered questions about the impact of disease on 10
aspects of daily activity/mood and on work/education; 5-point
Likert scale responses were dichotomised into “no/minor impact”
(1–3 or “don’t know”) and “strong impact” (4–5).
Results: For the 10 aspects of activity/mood a “strong impact” was
reported for ≥4, 1–3 or 0 aspects by 22.8%, 24.2%, and 61.9% of
respondents with PsO alone and 44.5%, 63.0%, and 27.0% of those
with PsA ± PsO. The most commonly reported strong impacts were
limitations on dress (22.6%), sleep disorders (16.3%) and depres-
sion