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CLINICAL REPORT
Emotional Ability and Skin-restricted Lupus Evolution: A Longitudinal
Study
Isabelle JALENQUES 1# , Fabien RONDEPIERRE 2# , Aurélien MULLIEZ 3 , Michel D’INCAN 4 , Silla M. CONSOLI 5 and The LuPsy
cohort investigators
1
Department of Adult Psychiatry and Medical Psychology, Clermont-Ferrand University Hospital, Clermont Auvergne University, 2 Department
of Adult Psychiatry and Medical Psychology, 3 Department of Clinical Research and Innovation and 4 Department of Dermatology, Clermont-
Ferrand University Hospital, Clermont Auvergne University, Clermont-Ferrand, and 5 Paris Descartes University, Sorbonne Paris Cité, Faculty
of Medicine, Paris, France; AP-HP, West Paris University Hospitals, Department of Psychiatry, Paris, France
#
These authors contributed equally to this work.
Impaired emotional abilities (higher scores of alexi
thymia and lower levels of emotional awareness) were
found in patients with skin-restricted lupus, warran-
ting examination of the relationship between these
abilities and the evolution of skin-restricted lupus,
using longitudinal data. A total of 75 consecutive out-
patients with skin-restricted lupus were recruited and
assessed by a dermatologist and a psychiatrist every
6 months over a period of 2.5 years. Alexithymia and
emotional awareness were evaluated with the French
versions of the Toronto Alexithymia Scale (TAS-20)
and the Levels of Emotional Awareness Scale (LEAS).
During follow-up, good stability of the LEAS scores was
observed, whereas TAS-20 scores varied; those varia-
tions were positively associated both with lupus dura-
tion and current psychiatric and personality disorders,
but not with lupus remission. Such findings regarding
2 complementary aspects of emotional functioning are
of direct interest for the management of patients with
skin-restricted lupus.
Key words: skin-restricted lupus; alexithymia (TAS-20); Levels
of Emotional Awareness Scale (LEAS); psychiatric disorders;
longitudinal study; emotional processing.
Accepted Mar 4, 2019; E-published Mar 5, 2019
Acta Derm Venereol 2019; 99: 564–570.
Corr: Isabelle Jalenques, Department of Adult Psychiatry and Medical
Psychology, Clermont-Ferrand University Hospital, Clermont Auvergne
University, 58 rue Montalembert, FR-63003 Clermont-Ferrand Cedex 1,
France. E-mail: [email protected]
P
sychiatric and personality disorders have been re-
ported recently among patients with skin-restricted
lupus (SRL) i.e. discoid lupus erythematosus (DLE),
lupus tumidus (LT) and subacute cutaneous lupus erythe-
matosus (SCLE) (1–4), as reported among patients with
systemic lupus erythematosus (SLE) or some chronic
inflammatory skin diseases (5–10).
Impaired emotional abilities have also been described:
alexithymia, a difficulty in recognizing and communi-
cating emotions, has been reported in SLE (11–15) and
skin diseases (16–21); and lower emotional awareness
(the capacity to represent, discriminate and elaborate
both one’s own and others’ emotional experience in a
given context) has been reported in patients with psoriasis
doi: 10.2340/00015555-3161
Acta Derm Venereol 2019; 99: 564–570
SIGNIFICANCE
Patients with skin-restricted lupus (SRL) have impai-
red emotional abilities, i.e. higher alexithymia (inability
to identify and describe emotions) and lower emotional
awareness. This follow-up study investigated the relation-
ship between emotional abilities and the evolution of SRL.
The results showed no direct relationship between SRL re-
mission and emotional abilities. Good stability of emotio-
nal awareness scores was observed, whereas alexithymia
scores varied; these variations were positively associated
both with duration of lupus and the presence of current
psychiatric and personality disorders. Such findings are of
direct interest for the management of patients with SRL.
who consider their disease to be stress reactive (18). We
recently demonstrated, in a case-control study, that pa-
tients with SRL had impaired emotional abilities (22), i.e.
exhibited higher alexithymia scores and lower emotional
awareness levels, than controls. Alexithymia scores, but
not emotional awareness levels, were associated with
concurrent psychiatric or personality disorders in patients
with SRL: the case-control differences persisted after
adjusting for such disorders, for emotional awareness
levels, but not for alexithymia scores.
In SLE, no significant correlation was observed bet-
ween alexithymia and medical variables, in contrast to
psychopathological symptoms, especially depression
and anxiety (11, 13). In psoriasis, one study reported that
alexithymia was associated with higher disease burden,
including significant impairment of quality of life, higher
levels of anxiety and depression, a higher risk of alcohol
dependency and impairment of work productivity (19),
while another did not find any association between
alexithymia and psoriasis severity, but higher scores of
alexithymia in the case of involvement of sensitive areas,
such as the face, hands, and genital area (20). In addition,
lower levels of emotional awareness predicted a better
response to dermatological treatment in psoriasis (18).
Given that our case-control study on SRL encompas-
sed a longitudinal, prospective component, we decided
to explore the relationship between emotional abilities
and evolution of SRL. The objectives of this study were
to assess, over a 2.5-year period: (i) SRL remission ac-
This is an open access article under the CC BY-NC license. www.medicaljournals.se/acta
Journal Compilation © 2019 Acta Dermato-Venereologica.