Acta Dermato-Venerelogica Issue No 7, 2017 97-7CompleteContent | Page 22
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SHORT COMMUNICATION
Mosaic Focal Dermal Hypoplasia (Goltz Syndrome) in Two Female Patients
Maella SEVERINO-FREIRE 1 , Aude MAZA 1 , Maria Paola LOMBARDI 2 , Emelie TOURNIER 3 , Nicolas CHASSAING 4,5 and Juliette
MAZEREEUW-HAUTIER 1,4
Department of Dermatology, Toulouse University Hospital, 24 chemin de Pouvourville TSA, FR-31059 Toulouse cedex 9, France, 2 Department
of Clinical Genetics, Academic Medical Center, University of Amsterdam, The Netherlands, 3 Anatomo Pathology Department, IUC Oncopole,
Paul Sabatier University, Toulouse, 4 U 1056 INSERM – FRE 3742 CNRS - Université Toulouse III ‘Différenciation Epithéliale et Autoimmunité
Rhumatoïde’, Toulouse, and 5 Medical Genetics Department, CHU Purpan, Paul Sabatier University, Toulouse, France. E-mail: maella.
[email protected]
1
Accepted Mar 15, 2017; Epub ahead of print Mar 15, 2017
Focal dermal hypoplasia (FDH) or Goltz syndrome is
an ectodermal and mesodermal disorder characterized
by abnormalities of various organs including the skin.
Cutaneous anomalies include skin hypoplasia, hyper- or
hypo-pigmented areas following the lines of Blaschko,
nodular fat herniation and papillomas. Hair can be sparse
and brittle. Nail findings include ridging, dysplasia or
hypoplasia. Many other organs may be involved, the most
common anomalies being skeletal anomalies (especially
on the extremities), short stature, coloboma of the iris
and retina (1–3).
FDH is caused by mutations of the PORCN gene
(Xp11.23) (4, 5) encoding a 461 amino acid 52-kDa
protein involved in the secretion and signalling of WNT
proteins, which plays a key role in embryonic tissue
development (6). Approximately 250 individuals with
FDH have been reported in the literature so far, either
in small series (3–18 patients) (2) or in case reports (7).
In 2016, 119 different mutations were registered in the
PORCN mutation database (http://www.
lovd.nl/PORCN). The majority of muta-
tions are scattered throughout the entire
coding sequence of the PORCN gene.
Large deletions and splice site mutations
were also reported (2). FDH is inherited
as an X-linked dominant disorder, with
females accounting for 90% of affected in-
dividuals. Ninety-five percent of affected
women have de novo mutations, whereas
5% inherit the mutation from their parents
(the mother or, rarely, the father, is affected
by post-zygotic mutation) (2, 8). In men,
hemizygosity for a mutation in PORCN (9)
is presumed to be lethal. However, males
may survive in case of Klinefelter syn-
drome (8) or mosaic forms (2). Postzygotic
mutations of PORCN have occasionally
been reported in females.
We report here 2 novel cases of FDH
mosaic in female patients.
examination, she had linear hyperpigmented and atrophic lesions
in a Blaschkoid distribution. Lesions were located on the right
arm, right leg and left trunk and involved approximately 10%
of the body surface. She also had syndactyly of 2–3 and 4–5
fingers of the left hand (Fig. 1). Histology performed on lesional
skin showed some scattered apoptotic cells in the epidermis and
pigment incontinence in the superficial dermis. After obtaining
written consent, molecular analysis was performed by Sanger
sequencing of the coding exons and exon-intron boundaries of the
PORCN gene (NM_203475.2, variant D) and multiplex ligation-
dependent probe amplification (MLPA) analysis. Both tests were
performed on DNA extracted from peripheral blood leukocytes
and did not reveal any mutation. Molecular analysis of PORCN
was then performed on DNA extracted from saliva and revealed
the mutation c.173_178delinsACT (p.Ala58_Gly60delinsAspTrp).
This mutation has not been reported previously and was absent
from the ExAc control population (10). The percentage of cells
carrying the mutation seems low in saliva, but cannot be deter-
mined precisely. This mutation is thought to be damaging as it is
responsible for the deletion of 3 highly conserved amino acids.
Case 2. A 16-year-old female with healthy, non-consanguineous
parents presented since birth with skin lesion in a limited distri-
bution (3% of body surface area). She had Blaschko linear hy-
CASE REPORTS
Case 1. A 21-year-old woman presented with skin
lesions since birth. She had no medical history
and her parents were not consanguineous. At
Fig. 1. Case 1. (a, b) Linear hyperpigmented and atrophic lesions in a Blaschkoid distribution
on the left trunk and right leg. (c) Syndactyly of 2–3 and 4–5 fingers of the left hand.
This is an open access article under the CC BY-NC license. www.medicaljournals.se/acta
Journal Compilation © 2017 Acta Dermato-Venereologica.
doi: 10.2340/00015555-2648
Acta Derm Venereol 2017; 97: 853–854