L to R: Chuck Mureddu; Elyssa Malin, legislative assistant
to Rep. James Langevin (D-RI), survivor Dawn Mureddu;
and Keith Korenchuk, Arnold & Porter.
Advocacy Day participants with Rep. Ralph Norman (R-SC).
Productive and exciting
This year was especially productive and exciting. Four new legislators signed up to support
Ellie’s Law: Representatives Theodore Deutch (D-FL ), David Cicilline (D-RI), Jamie Raskin (D-
MD), and Peter King (R-NY).
Also, in mid-April Senators Chris Murphy (D-CT) and Todd Young (R-IN) wrote a bipartisan
letter signed by nine other senators in support of the BAF’s and Bee Foundation’s report
language urging the development of best practices for the early detection of brain aneurysms.
The letter requests that the Senate Appropriations Subcommittee on Labor-HHS-Education
include the language in the report accompanying the fiscal year 2019 appropriations bill.
Significant traction on Capitol Hill
“Legislators are very supportive of increasing funding levels for brain aneurysm research, as
well as supporting our awareness and education initiatives,” says Ms. Buckley. “Many of them
and their staff remember us from previous Advocacy Days and are enthusiastic about helping
us move this legislation forward, as our progress this year demonstrates.
“We are gaining significant traction through our annual visits to Capitol Hill, which are well-
organized and very effective, thanks to the commitment of our delegates and our pro bono
government affairs counsel Arnold & Porter, which sent a volunteer representative for every
delegate team.”
Next year’s Advocacy Day will take
place in March 2019 and all are invited
to participate. Check our website later in
the year for the date and details.
B R AIN ANEU RYSM FOU NDATION | SU M M E R 201 8 | BAFOU ND.ORG
11