2018 Brain Aneurysm Foundation Annual Report 2018-Brain-Aneurysm-Foundation-Annual-Report | Page 15

L to R: Amy Smith, Arnold & Porter; Dan Brennan, Edge Therapeutics; Christopher S. Ogilvy, MD, Beth Israel Deaconess Medical Center;
Anna Alburger, of Ohio Rep. Dave Joyce’s office; Christine Buckley, Executive Director of the BAF; and survivor Tom Tinlin.
PRODUCTIVE AND EXCITING
Our 2018 was especially productive and exciting. Four new legislators signed up to support Ellie’s Law:
Representatives Ted Deutch (D-FL ), David Cicilline (D-RI), Jamie Raskin (D-MD), and Peter King (R-NY).
Also, in mid-April Senators Chris Murphy (D-CT) and Todd Young (R-IN) wrote a bipartisan letter signed by
nine other senators in support of the BAF’s and Bee Foundation’s report language urging the development of
best practices for the early detection of brain aneurysms. The letter requests that the Senate Appropriations
Subcommittee on Labor-HHS-Education include the language in the report accompanying the fiscal year
2019 appropriations bill.
SIGNIFICANT TRACTION ON CAPITOL HILL
“Legislators are very supportive of increasing funding levels for brain aneurysm research, as well as supporting
our awareness and education initiatives,” says Ms. Buckley. “Many of them and their staff remember us from
previous Advocacy Days and are enthusiastic about helping us move this legislation forward, as our progress
this year demonstrates.
“We are gaining significant traction through our annual visits to Capitol Hill, which are well-organized and
very effective, thanks to the commitment of our delegates and our pro bono government affairs counsel
Arnold & Porter, which sent a volunteer representative for every delegate team.”
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