Advocacy
Raising awareness among state and federal legislators
about brain aneurysms and advocating for increased brain
aneurysm research funding and policies that help patients
and families is an important part of our mission. We have
made significant strides, and will continue to work hard for
patients and families until we achieve all of our goals.
and saving lives. The delegation included survivors and
caregivers, family members who lost loved ones to brain
aneurysms, healthcare professionals, foundation board
members, and BAF corporate partners.
On March 29, 2017, the Brain Aneurysm Foundation led
a delegation of 123 people from 18 states to meet with
legislators on Capitol Hill for our 6th annual Congressional
Advocacy Day on Capitol Hill. The busy day, during which delegation members met with
200 legislators, helped raise awareness of brain aneurysms
and encourage support of Ellie’s Law (H. Res. 1648), named
for Ellie Helton, a teenager who died of a brain aneurysm.
This bill would provide $25 million ($5 million per year over
five years) in federal funding for brain aneurysm research.
This was the largest turnout to date, demonstrating the
growing commitment among those impacted by brain
aneurysms to advocate for policies aimed at improving The foundation thanks everyone who participated, with
a special nod to its pro bono government affairs counsel
Arnold & Porter for helping make Advocacy Day a success.
U.S. Senator Elizabeth Warren with brain aneurysm advocates on Capitol Hill.
Brain Aneurysm Foundation | 2017 Annual Report